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Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 29 9:09am | Replies (15)
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Replies to "Hi, just wondering whether u feel if ur quality of life has improved since Surgical Septal..."
Yes, my life has improved since my alcohol septal ablation & ICD implant. However, I now have cardiac amyloidosis or stiff heart syndrome.
Hi superhal, YES! YES! and YES! I was going along just fine even though my echoes over time showed a growing thickness of the ventricle wall. Then, I had a syncope 2/22. From that time on I was experiencing much shortness of breath, but no pain. Surgery was 7/22. ICD installed late 11/22 after months of dizziness with vertigo and two syncopes. The heart monitor I wore for a month finally helped my cardiologist and associates figure out that I was experiencing arrhythmias, a new thing for me. Let's face it, the heart underwent quite a bit of trauma during surgery. Since early 2023 I have been back to what I was doing before 2/22: biking, walking (did a 10K today with my walking club), gym, mowing the lawn, cleaning the house.... It's a hard decision to make, my cardiologist said in 2/22 that if I did not take the surgery step, "Your family will miss you." Then it became an easy decision even though I was terrified. Good luck in whatever you decide. You would be in good hands at Mayo. Keep us informed on how it is going.