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@thegirls, That is a really tough decision that you and your husband are facing. I don't have experience with a lung transplant, so I have located some support discussions where you can meet other lung patients who also faced the decision about lung transplantation. Please know that you are welcome to join any discussion anytime with any questions and comments.
You are not alone. I want to invite @helenrivera, @chickytina, @nnelson823, @nnelson823, @ktgirl, @sidney073, @kathy22, @jackieiez to meet you and to share their support and experiences.
Discussions that I think will provide you with some member insights:
- Lung transplant: investigating the pros and cons of double transplant
https://connect.mayoclinic.org/discussion/lung-transplant-2b6d3f/
- Lung Transplant: What can I expect?
https://connect.mayoclinic.org/discussion/lung-transplant-2/
- Does anyone regret getting a lung transplant?
https://connect.mayoclinic.org/discussion/does-anyone-regret-getting-a-lung-transplant/
- I would like to hear from anyone who has had a lung transplant
https://connect.mayoclinic.org/discussion/lung-transplant-3/
- Lung Transplantees: Let’s connect
https://connect.mayoclinic.org/discussion/lung-transplantees/
I am very happy to share these articles that feature @chickytina and @jackiez:
- Dancing til my feet hurt with new lungs: Meet @chickytina https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/dancing-til-my-feet-hurt-with-new-lungs-meet-chickytina/
- https://mayomagazine.mayoclinic.org/2024/07/heart-lungs-transplant-recipient-mayo-clinics-care-allowed-me-to-experience-life-to-its-fullest/
@thegirls, You are absolutely correct about how thoroughly the doctors at Mayo explain everything. I was at Mayo Rochester for my liver/kidney in 2009. Which Mayo location are you at?
Replies to "@thegirls, That is a really tough decision that you and your husband are facing. I don't..."
@thegirls I had a heart double lung transplant in April 2021. My heart was the main driver but also needed the lungs. So far so good for me. I have not regretted my decision 1 day. I am living life to the fullest-spending time with family and friends, enjoying my hobbies of riding and competing on my horses, walking my dogs and even traveling. I have seen big moments in my family and friends’ lives. It is a personal choice. Since having received this gift I believe I am here to give hope to others- those waiting on a transplant, those just transplanted and the family members of donors. I hope this helps-the journey is rough in the beginning but for me, the view was definitely worth the climb.
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I’m at the Phoenix. I had my first lung surgery in 2012 there as well. Great place to be.
I enjoy (maybe not the best word) responding to people who are feeling lost. It seems to give everyone a little break of calmness which we all need. Thank you for the links.