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Scleroderma (Systemic Sclerosis): Anyone else?
Autoimmune Diseases | Last Active: Jun 6 10:18am | Replies (93)Comment receiving replies
Just spoke with Mayo. They said they’re not scheduling new appointments at this time. I’m so sick and don’t know what to do
Replies to "Just spoke with Mayo. They said they’re not scheduling new appointments at this time. I’m so..."
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@kimberlyf
Actemra injection can be prescribed in cases like yours, with interstitial lung disease ILD progression on methotrexate and Cellcept. May need a Rheumatologist to get it prescribed but ask you PCP. If you have fluid, your PCP can prescribe a diuretic, like spironolactone, hydrochlorothiazide, or furosemide. Spironolactone is easier to tolerate.
Actemra is approved for both RA and scleroderma ILD. Maybe your PCP can prescribe Actemra. With ILD you can also see a pulmonologist. They can also prescribe OFEV - anti fibrotic drug for ILD, or possibly Actemra as well. Try to get a referral to pulmonology, if rheumatology is not available. Just a thought.