Specialist in New England

Posted by mame @mame, Aug 16 6:57am

Looking for a recommendation for specialist in my area. I live in Maine. I noticed that Mass General in Boston has both a bronchiectasis program & MAC. If I have both which should I choose?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

ljostroga1973 | @ljostroga1973 | Aug 18 8:57am

In reply to @camilleups "We are in Litchfield Park. I go on Oct 28th." + (show)

I’m in Goodyear and was wondering who you see for pulmonologist and infectious disease drs. I’m ready to fire mine

smallfish1 | @smallfish1 | Aug 27 7:24am

I also live in Maine. I have bronchiectasis and being treated at Southern Maine Medical Pulmonary Specialists. I have requested a second opinion on treatment and I have been referred to Mass General Brigham. Waiting for appointment.

mame | @mame | Aug 27 9:09am

In reply to @smallfish1 "I also live in Maine. I have bronchiectasis and being treated at Southern Maine Medical Pulmonary..." + (show)

Well hello fellow Mainer! I see Dr. Morin there. After my recent appointment, I started airway clearance with nebulizer, levabuteral and 3% saline. He also talked about an ordering a vest if I have no progress, then I will go to Boston.

smallfish1 | @smallfish1 | Aug 27 10:00am

In reply to @mame "Well hello fellow Mainer! I see Dr. Morin there. After my recent appointment, I started airway..." + (show)

Dr. Morin is my doc as well. He ordered a nebulizer for me last Friday. Waiting to receive it. Currently taking round of doxycycline. Vest is on order.

wsbme74 | @wsbme74 | Aug 28 7:52am

Mainer, too. I live outside of Portland and see Dr. D'Amico at Chest Medicine Associates, who also works in the CF clinic. Availability for appointments and calls is an issue and most on-call doctors and nurses there really don't understand Bronchiectasis. When I was first diagnosed last year, but a different pulmonologist there, they did not even mention airway clearance. I found out about that on my own (and then switched doctors).

I did see someone at Mass General but with that particular doctor, it wasn't worth the trip. I use NordX lab for samples and I wish they were better; I have had more sputum samples rejected than I think would happen at a bigger lab.