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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@karukgirl

Hello @isamac, and welcome to Mayo Connect.
I'm glad you found the Camzyos group, have you had a chance to read some of the posts?
I did not qualify for Camzyos and had a septal myectomy at Mayo Clinic, so I can't speak to your current experience and what you are going through, but I know there are a lot of other Camzyos folks who have similar stories.
I'm glad to hear you are better, that sounds promising. It seems Camzyos works differently for each person because we are all so different and unique, so perhaps going forward your HOCM will improve.
Are you an active person? Are you able to walk and exercise?

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Replies to "Hello @isamac, and welcome to Mayo Connect. I'm glad you found the Camzyos group, have you..."
isamac | @isamac | Aug 27 10:27am

Hi, im glad to connect to a group of folks who can share info of their individual experiences with Camzyos.
I am overall a healthy 65 year old! I had always been active until noticing a difference in my breathing when walking uphill or exercising a lot. This became evident around 5 years ago but I was initially diagnosed with some stress induced anxiety by a former cardiologist who passed away. In search of a new one last year I came to find out after undergoing heart ultrasound, heart MRI and heart stress test my heart was not in good shape.
Luckily on Camzyos I now have something other than open heart surgery to hopefully continue to improve my heart health and symptoms.

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