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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 5 9:44am | Replies (79)
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@dadcue

It is amazing how “steroid sparing” medications are used to get people off prednisone. At some point doctors regard long term prednisone use to be the problem instead of PMR.

When people have side effects from the steroid sparing medication it gets stopped right away.

Prednisone side effects either are ignored or treated with another medication. It isn’t so easy to stop the prednisone.

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tapamil65 | @tapamil65 | Aug 27 10:40am

I have had one for three years and the rheumatologist does a very poor job of guiding me through lowering prednisone. I have learned more from this group than the doc

I recently had a flare and the doc put me up to 20 again. He than brought me to 15 after a month and gave me an appointment in 6 months but said reduce to 10 after a month on 15 and go to 5 after that and stay there. I have done this before and have always gotten a flare at 5

Currently I am at 10. After refacing all your experiences I feel like I should do 9 1/2 after a month, then go to 9 for a month and just stay at that rate monitoring pain and stiffness as a progress
What are your thoughts

At what point should you be measuring Cortisol levels. And what is an acceptable level

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