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Introductions: Are you caring for someone with dementia?

Caregivers: Dementia | Last Active: Aug 16 2:33pm | Replies (762)
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@mongerj

I am in a similar situation with similar decline and my heart goes out to you. I feel like I am on a roller coaster ride going from acceptance back to denial, from strength to a complete loss of trust in my ability to help him, from happiness because of what we still have to deep sadness for what we have lost. There are protocols that promise complete reversal if you have lots of money and live an impossible lifestyle. Mostly I feel blessed to have been married to this man for 45 years now with all the ups and downs and will do my best, with lots of help, to make these years have meaning.

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Replies to "I am in a similar situation with similar decline and my heart goes out to you...."
Scott, Volunteer Mentor | @IndianaScott | Sep 25, 2018

Hello @mongerj I am sorry to read of what you are experiencing as a caregiver. I am Scott and I am glad to see you found Mayo Connect! This is a wonderful community of all kinds of individuals who have been thrust into the highly challenging role of caregiver, like yourself.

You write so well about the many emotional conflicts of caregiving for a loved one! As you describe, it is such a challening and demanding roller coaster to ride -- and one that is especially difficult to ride alone.

I know in my wife's situation I often wished there was more that I could do for her! You mention 'protocols that promise complete reversal'. I haven't heard of these. Can you share what they are?

Strength, courage, and peace!

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