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DiscussionOff Prednisone but Residual Stiffness
Polymyalgia Rheumatica (PMR) | Last Active: Aug 27 7:15am | Replies (37)Comment receiving replies
Replies to "@dadcue No, thank god. It was bad enough when I was first diagnosed—the most painful eye..."
Uveitis can be caused by an infection but my eye never had an infection. My uveitis was always the autoimmune type of uveitis. My immune system would start attacking my eye for no reason. and almost exclusively ... just my left eye. My ophthalmologist was impressed with how well I could detect the onset of uveitis because he said some people can't feel anything until it is too late. Yes, I would agree uveitis is painful except now the entire left side of my face including my left eye has no normal sensation at all. That was a post-op complication from trigeminal neuralgia.
I used to know exactly when uveitis was flaring except when it happened overnight in my sleep. I would wake up in the morning and couldn't see with my left eye. It wasn't like I was blind but my vision in my left would be extremely foggy. Sometimes I would be unable to see any fingers when they were held inches from my left eye. I would sometimes tell my ophthalmologist that I was blind in my left eye because I couldn't see anything. My ophthalmologist would shine a bright pen light directly into my left eye. When I said I could see some light, my ophthalmologist would reassure me that I wasn't blind ... yet.
Most of the time my uveitis never progressed that far. I did have a few cases of panuveitis when my ophthalmologist would hand me 100 mg of prednisone to take orally and said no limit to the number of steroid eye drops per day.
"Panuveitis, also known as diffuse or total uveitis, is a rare inflammatory eye disease that affects the internal structures of the eye. It causes inflammation throughout the uveal tract, which includes the iris, ciliary body, and choroid, as well as the retina, lens, optic nerve, and vitreous. This inflammation can lead to visual impairment, ocular discomfort, and pain."
It was weird how uveitis almost never happened in my right eye except for a couple of mild flares.