1. < Neuropathy
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Neuropathy treatments: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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cb3 | @cb3 | Aug 24, 2024
In reply to @pattic "I have peripheral neuropathy in both legs which is very painful. My neurologist prescribed Baclofen for..." + (show)
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I have peripheral neuropathy in both legs which is very painful. My neurologist prescribed Baclofen for me and it works great. It is not a supplement but it works.

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@pattic

Have you experienced any side effects from Baclofen? I'm glad you have found comfort.

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pattic | @pattic | Aug 24, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I have not had any side effects while taking Baclofen. I think it’s a good idea to research what the side effects are before you take a new medication.

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oneyeddie | @oneyedward | Aug 25, 2024
In reply to @johnbishop "I haven't had any side effects taking -R-ALA. I do have my days of feeling tired..." + (show)
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I haven't had any side effects taking -R-ALA. I do have my days of feeling tired but I don't think the R-ALA plays any part of me feeling tired. I can't speak for others though.

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I have been using MAGNELIFE leg relaxing cream and Ultima Replenisher electrolyte mix with off and on good results. I know this is bad to uses but Gator Aid works every time. I will try R-ALA.

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richardr | @richardr | Aug 25, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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PDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin sheath and peripheral nerves. Has anyone used this or read about this for peripheral neuropathy ? My sister-in-law had amazing resolution of her Raynaud's disease with this medication.

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John, Volunteer Mentor | @johnbishop | Aug 25, 2024
In reply to @richardr "PDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin..." + (show)
Profile picture for richardr @richardr

PDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin sheath and peripheral nerves. Has anyone used this or read about this for peripheral neuropathy ? My sister-in-law had amazing resolution of her Raynaud's disease with this medication.

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I did a quick search of Connect and didn't see any other members who have mentioned using PDE5 inhibitors for neuropathy but I did find some research on the topic. Haven't seen any clinical trials or studies though.

"Peripheral neuropathy: A report was published suggesting that daily use of PDE5 inhibitors, through improved blood flow through vasa vasorum, helped alleviate peripheral neuropathy symptoms."
-- PDE5 Inhibitors: https://www.ncbi.nlm.nih.gov/books/NBK549843/

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irr4et | @irr4et | Aug 25, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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I fell very hard onto my chin and beast bone two mos ago. Resulted in concussion. Ever since I have had vibrations and burning through my body plus bad burning headaches and fatiguing so easily. Even regular walking causes a flare up of these symptoms. I get very sleeping after digesting food. I already had Fibromyalgia. Does anyone know how long recovery will be?

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richardr | @richardr | Aug 25, 2024
In reply to @johnbishop "I did a quick search of Connect and didn't see any other members who have mentioned..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

I did a quick search of Connect and didn't see any other members who have mentioned using PDE5 inhibitors for neuropathy but I did find some research on the topic. Haven't seen any clinical trials or studies though.

"Peripheral neuropathy: A report was published suggesting that daily use of PDE5 inhibitors, through improved blood flow through vasa vasorum, helped alleviate peripheral neuropathy symptoms."
-- PDE5 Inhibitors: https://www.ncbi.nlm.nih.gov/books/NBK549843/

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John, thanks for your reply and for the link. This is a 2023 article and the summation certainly indicates that this may in fact be a valid treatment possibility for PN. As I said earlier my sister-in-law is symptom free of the Raynaud's for one year after starting treatment. Let's hope Mayo Clinic will pickup on this and research this possibility. Thanks, Rick

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bigjohnscho | @bigjohnscho | Sep 5, 2024
In reply to @bigjohnscho "I am new to this forum although I have been suffering with peripheral neuropathy for 2..." + (show)
Profile picture for bigjohnscho @bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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John, Volunteer Mentor | @johnbishop | Sep 5, 2024
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
Profile picture for bigjohnscho @bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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It's just my opinion after trying many of these over the years since I developed PN to find something to help the numbness. I don't have pain you are having and I don't blame you for being skeptical. I did a search of Connect and could find no member mention of the ReNerva. Their webpage screams run Forrest run to me - https://glossiebeauty.com/products/renerva. They don't list the ingredients, just "Made with a unique blend of powerful herbs, this cream is formulated to deliver effective results quickly."

You might have better luck finding something by searching through the list on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/treatments/.

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bigjohnscho | @bigjohnscho | Sep 5, 2024
In reply to @bigjohnscho "Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations..." + (show)
Profile picture for bigjohnscho @bigjohnscho

Has anyone tried this new cream being advertised called Renerva?As usual Thera are lot of recommendations from people singing it’s praises but I have become very sceptical having been disappointed many times. Please comment if you’ve tried it

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When do you think there might be a Pirenzepine product available

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