What help is available for very slow motility?

Posted by virgina @virgina, Aug 18 8:32pm

I’ve been searching, for over two years, for help with chronic constipation and slow, to no motility. I’ve tried numerous, expensive, prescriptions, and Dr. said surgery is only option. (I had a Sitz Marker procedure to diagnose low motility) The only relief I get is with Magnesium Citrate. I have, most of my life, had problems with IBS-C but could always solve it with over the counter support. This Doctor is my second opinion. My first Gastroenterologist told me there is nothing that can be done-take Miralax
. I’ve had 2 CT scans with contrast which showed a redundant and torqued colon plus severe constipation. I would love some alternative ideas to increase motility, before having to have surgery.

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I had RNY in 2016. For motility I take Linzess 290 and colace 100 daily

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@nova1976

I had RNY in 2016. For motility I take Linzess 290 and colace 100 daily

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Thank you. I’ll have to look up RNY. I took the highest dose of Linzess, but it didn’t help- maybe with colace it might work.
Im open to any possibilities.

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@jlstjohn

I also have slow colonic motliity (as shown by Sitz marker test done without stopping my bowel regimen at the time) and a tortuous colon. I am on everything: Miralax, Motegrity, Senna, magnesium. I do a weekly Miralax home cleanse (255 grams Miralax in 64 ounces Gatorade). I add 3 tablets of bisacodyl at bedtime for extra help. I do a 500 ml home soap suds enema at least 5 days a week; the "soap" acts like an irritant and the volume of the enema helps initiate peristalsis. I often do it for symptoms relief (lower abdominal pressure, bloating). I usually have to use a bit of manual massage on my abdomen to help things come out. I just had a consult with surgery regarding an ostomy. I am not quite ready for that, I want to exhaust ALL of my options. Next up is a repeat with Physical Therapy for pelvic floor training (I also have issues with my anal sphincter muscles/pelvic floor muscles coordinating properly). I had gone through this 2 years ago and perhaps didn't take it seriously enough. My GI doctor is okay with all of my home therapies, but I would check with yours before initiating anything new as everyone is different. Best wishes.

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Thank you for such an informative response. Lots of options I didn’t realize possible.

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@virgina

Thank you. I’ll have to look up RNY. I took the highest dose of Linzess, but it didn’t help- maybe with colace it might work.
Im open to any possibilities.

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RNY is gastric bypass
If that doesn’t help add a ducolax pill (over the counter)

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Hello 👋 I have the same if that's what they non motility disorder for me. Recently did a CT scan of my spine. Bone spurs pressed against my esophagus that's now before this began I was a healthy 42 year old woman. To get to the ask for doctor to or Reglan generic name Metaclopromide start slow with 5mgfor you what may work for me may not work for you. I have 10 m. It helps to digest your food a little quicker than just a regular emptying of the stomach contents. Zofran for nausea. That's been my regimen for for a little bit as a result I do have a peg tube inserted due to malnourishment basically wasting away so had to get this done. But anyway I the Lord heals you. I'm not completely there but getting there I used to weigh 170. Now maybe 100possible 105 pounds due to haven't been able to eat and hold my food down. The doctors don't exactly went to several gastrointolgist I'm mean it's been an exhausting journey o have chronic anxiety now due to not knowing and still completely sure what is wrong. Go to see a neurosurgeon soon due to the bone spurs that maybe the issue. I pray get it fixed and prayfully I can eat a real meal again. Until then please don't lose hope. There's only One True Healer he just hasn't stopped at my door yet but still I shall never lose hope or faith. May God be with you!!! Give me updates on the medicine if you doctor says he will let you try them out.

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@hikeema123

Hello 👋 I have the same if that's what they non motility disorder for me. Recently did a CT scan of my spine. Bone spurs pressed against my esophagus that's now before this began I was a healthy 42 year old woman. To get to the ask for doctor to or Reglan generic name Metaclopromide start slow with 5mgfor you what may work for me may not work for you. I have 10 m. It helps to digest your food a little quicker than just a regular emptying of the stomach contents. Zofran for nausea. That's been my regimen for for a little bit as a result I do have a peg tube inserted due to malnourishment basically wasting away so had to get this done. But anyway I the Lord heals you. I'm not completely there but getting there I used to weigh 170. Now maybe 100possible 105 pounds due to haven't been able to eat and hold my food down. The doctors don't exactly went to several gastrointolgist I'm mean it's been an exhausting journey o have chronic anxiety now due to not knowing and still completely sure what is wrong. Go to see a neurosurgeon soon due to the bone spurs that maybe the issue. I pray get it fixed and prayfully I can eat a real meal again. Until then please don't lose hope. There's only One True Healer he just hasn't stopped at my door yet but still I shall never lose hope or faith. May God be with you!!! Give me updates on the medicine if you doctor says he will let you try them out.

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Thank you,
Quite a journey!

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@jlstjohn

I also have slow colonic motliity (as shown by Sitz marker test done without stopping my bowel regimen at the time) and a tortuous colon. I am on everything: Miralax, Motegrity, Senna, magnesium. I do a weekly Miralax home cleanse (255 grams Miralax in 64 ounces Gatorade). I add 3 tablets of bisacodyl at bedtime for extra help. I do a 500 ml home soap suds enema at least 5 days a week; the "soap" acts like an irritant and the volume of the enema helps initiate peristalsis. I often do it for symptoms relief (lower abdominal pressure, bloating). I usually have to use a bit of manual massage on my abdomen to help things come out. I just had a consult with surgery regarding an ostomy. I am not quite ready for that, I want to exhaust ALL of my options. Next up is a repeat with Physical Therapy for pelvic floor training (I also have issues with my anal sphincter muscles/pelvic floor muscles coordinating properly). I had gone through this 2 years ago and perhaps didn't take it seriously enough. My GI doctor is okay with all of my home therapies, but I would check with yours before initiating anything new as everyone is different. Best wishes.

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Sounds very familiar. I’m trying everything, even though Dr. says surgery is only option. Today I’m making an appt for acupuncture. Keep on, keeping on!!!!

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Agree delay surgery when you can.

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@hammock117

Agree delay surgery when you can.

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Thanks for the confidence!

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@mikhailyza0403

Motility not mobility, right?
I am also plagued by constant low motility and chronic constipation. These issues are not affected by what I eat or anything else having to do with my diet. I am simply the king of flatulence. It is a common event after I eat a meal but will also come about in the middle of the day when I haven't eaten anything. As often as not, the flatus is fairly non-odorous; however once in awhile it is nuclear in intensity and whiffiness. I would love to know what is the best anti-flatulence preparation on the market and what you suggest I can do to help myself out of this stinky swamp!

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mikhaileyza0403,
Ain't these 💩💩issues the pits. CIC has been my constant companion for 17 yrs (what the heck do these GI docs study in school) So hold your head high and embrace your title of King of flatulence 👑 Laugh for the day....stinky gas does not even make my top 30 problems... but I guess since I rarely leave the house, I can just shut the door. ShelleyW

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