Adrenal Insufficiency

Posted by Cal @sfccole, Jun 12 7:44pm

Hello everyone I am new to this group but not new to diseases and disorders. I have SO MANY conditions that I have been diagnosed with. I think that my adrenal insufficiency has many faces and I can't seem to find any MD who seems to know what to tell me or how to treat it. Diagnosed in 2009.

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If you can get him into a Mayo Endocrinologist, do it.
I was on prednisone for 3 1/2 years for Autoimmune.
Transitioned onto Hydrocortisone and one week later caught Covid. Was never told I needed ro increase Hydrocortisone if I got sick ( double/ triple dose). Nearly went into Adrenal Crisis due to lack of cortisol! Its equivalent to not giving a diabetic orange juice and insulin in an impending diabetic coma!😡
The ER missed it too so good luck with the bracelet.
Educate yourself and get a GOOD Endocrinologist.
Im trying to get into Mayo after this near disaster!

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@cantek

If you can get him into a Mayo Endocrinologist, do it.
I was on prednisone for 3 1/2 years for Autoimmune.
Transitioned onto Hydrocortisone and one week later caught Covid. Was never told I needed ro increase Hydrocortisone if I got sick ( double/ triple dose). Nearly went into Adrenal Crisis due to lack of cortisol! Its equivalent to not giving a diabetic orange juice and insulin in an impending diabetic coma!😡
The ER missed it too so good luck with the bracelet.
Educate yourself and get a GOOD Endocrinologist.
Im trying to get into Mayo after this near disaster!

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Having diabetes for nearly 50 years I can say this about diabetic comas. I diabetic coma can happen for having too high a blood sugar which would require insulin. Or it could be from having too low a blood sugar which would respond to orange juice ( or some other form of carbohydrate or sugar). They are both dangerous situations that must be treated. But they are opposite ends of the spectrum and wouldn’t happen at the same time. The trick is monitoring blood sugar, finding the healthy targeted blood sugar range and the appropriate treatment to stay in that range.

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@cehunt57

Having diabetes for nearly 50 years I can say this about diabetic comas. I diabetic coma can happen for having too high a blood sugar which would require insulin. Or it could be from having too low a blood sugar which would respond to orange juice ( or some other form of carbohydrate or sugar). They are both dangerous situations that must be treated. But they are opposite ends of the spectrum and wouldn’t happen at the same time. The trick is monitoring blood sugar, finding the healthy targeted blood sugar range and the appropriate treatment to stay in that range.

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Should have used or insulin.
Both very dangerous situations and unfortunately AI is not well understood.

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Welcome Becky! I'm fairly new to this platform but hope you find some good support here. I have the same, recently diagnosed. I take a small amount of fludocortisone twice a day, prescribed by my nephrologist. Not sure why not the Endo but, it's working for me so far. I was getting acute symptoms of low sodium and with low blood pressure, lots of falls. Haven't fallen since so lots of relief their. Hope you find some solutions that work for you too.

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@rhapsody

Welcome Becky! I'm fairly new to this platform but hope you find some good support here. I have the same, recently diagnosed. I take a small amount of fludocortisone twice a day, prescribed by my nephrologist. Not sure why not the Endo but, it's working for me so far. I was getting acute symptoms of low sodium and with low blood pressure, lots of falls. Haven't fallen since so lots of relief their. Hope you find some solutions that work for you too.

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I too have bouts of acute low sodium, but with high blood pressure! This makes no sense to me, but it doesn’t seem to bother the doctors. Wish I knew!

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@reets70

I too have bouts of acute low sodium, but with high blood pressure! This makes no sense to me, but it doesn’t seem to bother the doctors. Wish I knew!

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@reets70 You mentioned that your bouts of low sodium and high blood pressure doesn’t seem to bother your doctors at all, but makes no sense to you. So on your next visit ASK them why it doesn’t bother them! Couldn’t hurt!

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@becsbuddy

@reets70 You mentioned that your bouts of low sodium and high blood pressure doesn’t seem to bother your doctors at all, but makes no sense to you. So on your next visit ASK them why it doesn’t bother them! Couldn’t hurt!

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I believe that my high blood pressure is due to the sodium chloride pills I have been prescribed for the last seven years. I really feel that they are just masking what the true issue is. I have to restrict fluid intake every day also.
I see a nephrologist who says my kidneys are fine too. Makes no sense to me.

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@reets70

I too have bouts of acute low sodium, but with high blood pressure! This makes no sense to me, but it doesn’t seem to bother the doctors. Wish I knew!

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They leave us scratching our heads sometimes, that's for sure! I get low and high blood pressures almost daily so take medicine for both. It's like playing ping pong! I hope you are able to keep the high blood pressure at bay.

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