Pelvic pain

Posted by dudashen @dudashen, May 11 11:51am

Does anyone else suffer from chronic pelvic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Pelvic pain is miserable! I’m being treated by a pelvic therapist ( I always thought was only for women) after a failed back surgery and prostatitis my urologist referred me. I never knew there was so many nerves . My pelvic is extremely tight causing nerve pains in both legs , groin/testicles, anus . It’s not the greatest therapy but if it helps it helps. As @gkissick said moving over in bed is hard, I have to roll out of bed.

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@dlydailyhope

@dudashen did they recommend surgery to address the pelvic organ prolapse (lift up organs that may be pressing on organs/nerves causing pain? Did you have children which may have moved things around in your pelvis?

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dailyhope:
No they didn’t recommend surgery for my prolapse and I’ve never had children.

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@sbtheplumber1

Pelvic pain is miserable! I’m being treated by a pelvic therapist ( I always thought was only for women) after a failed back surgery and prostatitis my urologist referred me. I never knew there was so many nerves . My pelvic is extremely tight causing nerve pains in both legs , groin/testicles, anus . It’s not the greatest therapy but if it helps it helps. As @gkissick said moving over in bed is hard, I have to roll out of bed.

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I had colorectal surgery, which over time led to severe pelvic floor pain. My Physical Therapist is using an apparatus referred to as Softwave TRT. After 3 sessions, along with routine exercise, I experience both mental and physical improvement.

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@kenc

I had colorectal surgery, which over time led to severe pelvic floor pain. My Physical Therapist is using an apparatus referred to as Softwave TRT. After 3 sessions, along with routine exercise, I experience both mental and physical improvement.

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@kenc I’m glad it’s helping you ! Now I have something else new to add to my list to check into , if it helps I’m in for trying it . Thanks

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Oh yes, but mine was from endometriosis and was cured way back in 1985 when I had a total abdominal hysterectomy. I had started suffering in 1969. It hurt me 1/2 of my monthly cycle every month & made me miserable but you are probably not talking about that type of pain.
Margaret

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@rashida

@sunny65 I do - but I don’t think my pelvic pain is connected with anal fissure. I have been prescribed Nifedipine 0.2% ointment compound but so far after a week I still have the fissure.

My pelvic pain is over my bladder, but I do not have any bladder infection/UTI. The pain feels like it did when I used to get my periods (I’m menopausal now - will be 78 this year).

I have had abdominal and transvaginal ultrasounds showing nothing abnormal, and my colonoscopy showed three benign polyps which were removed.

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My neurologist thinks that it is a nerve pain near my tailbone. I had injury when I was 14 years old. He prescribed me Lyrica. Let’s see if this works.

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@gkissick

I have been struggling with pelvic pain since January 2024. My symptoms are pain below the waistline on both sides with groin pain on the right side. The pain is at its worst when I get out of bed and when I roll from side to side at night. Recently I was prescribed meloxicam 7.5 mg. I have been taking the meds for about a week now and the pain is not as severe but is still present. My next step is to get shots in both pelvic joints to see if the pain gets better.

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I have similar pains in pelvic floor. Intermittent and migratory (come and go and move around). Was eventually diagnosed as nerve pains couple months after TURP surgery. Was horrible. Tried caudle epidermal, pain specialist, etc but nothing worked. Eventually I was prescribed Amitriptyline, one of the tricyclic drugs for depression but was found to help with nerve pains (called “off label” for when a drug works for other purposes than originally developed)). Took several months to adjust to side effects but since then, has really helped. May be something you can discuss with your doctor.

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@dlydailyhope

@dudashen and @rashida Where do you have pain in your pelvis? I have spinal stenosis/DDD and small fiber neuropathy. I have had spine and brain MrIs but never an MRI on my pelvis/hip joints. I see a orthopedic doctor that specializes on pelvis/hip this week and I want to ask them to do a MRI on my pelvis/hips to see what may be causing the pain in my hip joints/hip flexors/bttocks. I have had lumbar spinal injections to delay surgery which has helped manage some of the spine pain that runs down my lower back, buttocks, legs to feet but doesn’t help with hip/pelvis pain. I don’t know if I need hip replacement at some point (I am currently 54). I also have painful hip bursitis that flares up at times. You can use Salonpas lidocaine pain patches where it hurts to see if that can help. Most pain relievers don’t really work for nerve pain and NSAIDs can cause stomach gastritis erosions that can turn into ulcers if you take too much.

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@dlydailyhope Unfortunately I cannot simply ask for any scan or procedure and get it. I live in Ontario and we have a government health plan. We don’t get to decide which scans/procedures we should have. I have asked my doctor for an MRI but because nothing was seen on a CT scan I had been given, the radiologist who did the scan said an MRI is not necessary. If a specialist here says something is not necessary or is nothing to worry about, my family doctor just has to take his/her word for it. Doctors and specialists won’t do anything our government plan won’t pay for - and that also includes prescription medications.

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@rashida

@dlydailyhope Unfortunately I cannot simply ask for any scan or procedure and get it. I live in Ontario and we have a government health plan. We don’t get to decide which scans/procedures we should have. I have asked my doctor for an MRI but because nothing was seen on a CT scan I had been given, the radiologist who did the scan said an MRI is not necessary. If a specialist here says something is not necessary or is nothing to worry about, my family doctor just has to take his/her word for it. Doctors and specialists won’t do anything our government plan won’t pay for - and that also includes prescription medications.

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That's unfortunate to hear. Can primary care refer you to pain management OR uro or uro-gynecologist? There's so much new information weekly if not daily on the topics of pain, and for women on the many musculoskeletal issues of hormone changes.

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@terry1976

That's unfortunate to hear. Can primary care refer you to pain management OR uro or uro-gynecologist? There's so much new information weekly if not daily on the topics of pain, and for women on the many musculoskeletal issues of hormone changes.

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@terry1976 general physicians are in short supply where I live in Canada and specialists here are even less available. My husband and I are two of the lucky few who were fortunate to find a family doctor a year after moving to another city and there are hundreds of residents who have been living here longer than we, still looking for a family doctor. My doctor has sent out several referrals to gynecologists in the city as well as outside our city area, but every one has been rejected as none of the gynecologists are taking new patients. She did refer me to physiotherapy but our government plan only pays for six half hour sessions. I was referred to physio for neck pain and knee pain and during the six session I only managed to get some exercises for my neck.

My family doctor told me my pelvic ultrasound showed fluid in my uterus and there was an area she saw that concerned her but we haven’t been able to find a gynecologist for me. The one gynecologist she personally discussed the ultrasound with just told her fluid in the uterus is nothing to worry about and if anything it gives a clearer picture of the uterus. She is not worried about the results at all (yet another she discussed her concern with told her an endometrial biopsy would be the only way to know for sure). If specialists dismiss a concern, a family physician just has to take their word for it because they know the health plan will not pay for any “unnecessary” tests or procedures.

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