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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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I have had idiopathic neuropathy for ten years. What works for me is to eat a low sugar , no gluten diet.
This makes an incredible difference in my pain levels. When I eat gluten or sugar I pay for it.
It will take two to three weeks of a low sugar gluten free diet to see results. Even the sugar in fruits
can make a difference, try to stay with berries for a low sugar fruit.
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3 ReactionsDoes taking R-ALA make you feel tired when you start taking it
I haven't had any side effects taking -R-ALA. I do have my days of feeling tired but I don't think the R-ALA plays any part of me feeling tired. I can't speak for others though.
Do you mind me asking where you purchase your R-ALA
from.
The Na-R-ALA that I take is included in the protocol of neuropathy supplements that I take (4 capsules in the morning, 2 at noon, 4 in the evening). I attached a Why the Protocol PDF document with links including the research for each of the supplements and there is a link to the site where the protocol group orders the monthly supply.
I haven't taken this Immunovites brand but it's similar to what I take. It says 600 mg per serving and a serving size is 2 capsules - https://www.amazon.com/Stabilized-R-Alpha-Increased-Absorption-R-Lipoate/dp/B07DP8DHBH/
Why the Protocol (Why-the-Protocol.pdf)
@pattic
Have you experienced any side effects from Baclofen? I'm glad you have found comfort.
I have not had any side effects while taking Baclofen. I think it’s a good idea to research what the side effects are before you take a new medication.
I have been using MAGNELIFE leg relaxing cream and Ultima Replenisher electrolyte mix with off and on good results. I know this is bad to uses but Gator Aid works every time. I will try R-ALA.
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1 ReactionPDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin sheath and peripheral nerves. Has anyone used this or read about this for peripheral neuropathy ? My sister-in-law had amazing resolution of her Raynaud's disease with this medication.
I did a quick search of Connect and didn't see any other members who have mentioned using PDE5 inhibitors for neuropathy but I did find some research on the topic. Haven't seen any clinical trials or studies though.
"Peripheral neuropathy: A report was published suggesting that daily use of PDE5 inhibitors, through improved blood flow through vasa vasorum, helped alleviate peripheral neuropathy symptoms."
-- PDE5 Inhibitors: https://www.ncbi.nlm.nih.gov/books/NBK549843/
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