Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

I agree most tabs are simply food supplements which won't harm or help ov used one of the top ones from USA for 4 years I believe they are a good company but alas did not work for me and they are expensive one neurologist told me to try to cut out an item of my diet only one try for a couple of weeks then try another etc one patient found red wine exasperated her p n I am trying this with 3 items at the moment trying 2 much at once can lead to failure james in ireland

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@debralucas059

I take a supplement by Immunovites called NA R-Alpha Lipoic Acid 600mg USP. I searched and found this on YouTube from the Nerve Doctors. I know how neuropathy feels like and this works for me. I bought it from Amazon or Walmart. It works great!! I hope it helps you.

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Hi Debra, I suffer with the same complaint. Do you mind if I ask how many capsules do you take per day and does it give you heartburn. What time do you take them.
All The Best, John

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@bigjohnscho

Hi Debra, I suffer with the same complaint. Do you mind if I ask how many capsules do you take per day and does it give you heartburn. What time do you take them.
All The Best, John

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I take two 300mg capsules twice daily (2 in am and 2 at night) for 1200 mg. It can cause nausea and stomach issues for some people. I know some that have had to gradually increase the dose for a week or so before going to the full amount by starting with 100 mg which probably means you would need to buy a batch of 100 mg Na R-ALA capsules.

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Thanks for that, I think I will give it a try

John

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Does baclofen work better then lyrica?

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@johnbishop

I take two 300mg capsules twice daily (2 in am and 2 at night) for 1200 mg. It can cause nausea and stomach issues for some people. I know some that have had to gradually increase the dose for a week or so before going to the full amount by starting with 100 mg which probably means you would need to buy a batch of 100 mg Na R-ALA capsules.

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I have searched for Immuvites Na R-ALA 300mg and I can’t find them. I can find other strengths but not the 300mg.

John

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@bigjohnscho

I have searched for Immuvites Na R-ALA 300mg and I can’t find them. I can find other strengths but not the 300mg.

John

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It might just be the way it's advertised. This one says 600 mg daily serving but the daily serving is 2 capsules at 300 mg to get the 600 mg serving - https://www.amazon.com/Stabilized-R-Alpha-Increased-Absorption-R-Lipoate/dp/B07DP8DHBH.

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I have had idiopathic neuropathy for ten years. What works for me is to eat a low sugar , no gluten diet.
This makes an incredible difference in my pain levels. When I eat gluten or sugar I pay for it.
It will take two to three weeks of a low sugar gluten free diet to see results. Even the sugar in fruits
can make a difference, try to stay with berries for a low sugar fruit.

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@johnbishop

I take two 300mg capsules twice daily (2 in am and 2 at night) for 1200 mg. It can cause nausea and stomach issues for some people. I know some that have had to gradually increase the dose for a week or so before going to the full amount by starting with 100 mg which probably means you would need to buy a batch of 100 mg Na R-ALA capsules.

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Does taking R-ALA make you feel tired when you start taking it

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@bigjohnscho

Does taking R-ALA make you feel tired when you start taking it

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I haven't had any side effects taking -R-ALA. I do have my days of feeling tired but I don't think the R-ALA plays any part of me feeling tired. I can't speak for others though.

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