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@katgob

Thank you, Lori. I have asked a number of times, and my team always says it is good. That they will fluctuate like you said. Your other statistics are what is most important they say, and those remain above the minimum. I think it is because i feel great and my head will think I am back to normal.

I have slowly come off drugs, so now i am only on Ursodiol, Magnesium, Prevymis, Femara (breast cancer), Acyclovir and Bactrim. Not getting vaccines for a year, I take 3 of these for the year. I do not think what might go wrong. I just take each day as it comes. I have pills for nausea, heartburn and more. But i do not take them. It is odd to think i have a 26-year-old males' cells my body has so far accepted. How much of what i feel is in my head and my memories as to how i have felt. You have mentioned Lori that you feel more energized that you likely would feel at your age. What brings that about? "Transplant" is crazy to think about. So many of us with different body parts transplanted, yet all having blood in their veins that needs monitoring and a mind that and body that need nurturing.
I hope all of us enjoy the rest of the summer before we welcome in Fall.

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Replies to "Thank you, Lori. I have asked a number of times, and my team always says it..."

Hi @katgob, Not to worry about taking those few meds you’re on post transplant. You’ll be able to stop the acyclovir and Bactrim when you’ve had your vaccinations. They’re still protecting you from shingles (acyclovir) and lung infections. I had a few gvhd issues delayed my stopping the tacro and was on a low dose for 2.5 years. Consequently, i was also taking valacyclovir, bactrim, penicillin, pozaconazole, ursodial, protonix, and magnesium. Not an issue at all. Now I’m back to an empty medicine cabinet. ☺️

I really do feel energized, like I’m in my 20s, considering I recently turned 70. Having the immune system of a 20 year old seemed to have given me the fountain of youth! LOL. He was 20 at the time of transplant. Now we’ve both matured another 5 years. Of course, it was one heckuva medical odyssey to get to this point.