← Return to Desperately seek answer . really high kappa lambda light chain numbers

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@singularity

I'll be seeing my GP on Tuesday and asking for more info about ATTR. I think I share the same concerns as you do.

Doctors are as human as the rest of us but they do know stuff. You need the doctors as well as to take care of yourself. Asking the right questions is important. I don't think I have ATTR but I do think there is value in feeding the question into their equation.

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Replies to "I'll be seeing my GP on Tuesday and asking for more info about ATTR. I think..."

That is all that matters. As with me, I simply wanted to eliminate that possibility. And it's not that I fault doctors. They have an extremely difficult profession as medical science is ever changing and new diagnosis and diagnostic abilities are coming about every day. And like I said, due to the symptoms, only a cardiologist specialist will put the pieces of the puzzle together. I have spoken to doctors that never even heard of the disorder ATTR. My gastroentrologist even had to research out the black dots on my retinal being commonly associated with colon cancer. She admitted that she had once heard something about it, but never looked into it until it was the reason for my wanting to see them. So no single doctor can be expected to know everything. But I absolutely love a doctor who is not only willing to listen, but is then willing to take the time to research out for themselves the possibility of there being a disorder they don't know about. One that will think outside the box when necessary. It shows they truly care about their patient and solving their patient issues.

For what it is worth you should have blood tests with kappa lambda ratio and see Hematologyoncology to decide if you have pre myeloma.
I have mgus the kappa is not as high as yours but I got mine down from 2.9 to 2.2 with healthy plant based diet low to no sugar it might help you although you have to be careful if your kidney is struggling some veggies can make that worse. Keep up your exercising and stay hopeful!!