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Dr suspects lymphoma but labs aren't abnormal enough yet
Blood Cancers & Disorders | Last Active: Sep 2 10:26am | Replies (16)Comment receiving replies
thank you so much for responding ...yes my RBC is dropping Protein in my blood is dropping ....H&H are normal by 1 POINT and they weren't that way a year ago they were much higher , low globulin.... i have horrible pain in my back hips and legs .... no appetite ... my eye dr said my eyes have what look like "pot holes" in them and they so dry ... cold and sweating at the same time, wake up at night drenched in sweat . exhausted daily ... I feel bad about 85% of the time ..... she won't send me to hematology , says my labs aren't abnormal enough yet..
Replies to "thank you so much for responding ...yes my RBC is dropping Protein in my blood is..."
Yes, for sure you need to seek out a second opinion with a specialist. God Bless 🙏
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This may be one of those times where you need to be the squeaky wheel and keep nudging your doctor to get some answers.
If your doctor mentioned that she suspects lymphoma then that should be enough to get a referral to a hematologist or hematologist oncologist. (Though many specialists are both). You’re having so many uncomfortable symptoms that it warrants more than a ‘wait and see’ when your lab results are showing a steady decrease in red blood counts, globulin levels and a previous history of suspicious cells in a lymph biopsy 2 years ago. Plus, my goodness, feeling ‘bad’ about 85% of the time is disheartening!
I’m not a doctor but I have had experience with my PCP, whom I had trusted for years, totally throwing me under the bus and missed a major diagnosis 3 weeks in a row for not bothering to follow through with blood work. It took a hematologist less than 30 seconds to look at my labs and have me rushed to the hospital. I’m not, in any way, suggesting you have an issue like that. I just want to make a point that had my husband and I not been assertive to get results, I wouldn’t be here. We have to be our own advocates some time!
If your doctor won’t listen to you, do you have the option of another PCP? Some insurances don’t require a referral to a specialist. Do you know if your insurance does?