She tested positive for 027/NAP1/B1 on August 3rd. Went on vanco for ten days. There was a slight improvement, but not much. Got a negative result on August 13th, but she was still anxious and wanted more answers since she was still feeling meh, so she went back to ER and they put her on Dificid. Within 2 days she started feeling better and had four straight days of feeling almost normal. Then her stomach started gurgling and she has had small diarrhea episodes about 3 times a day. It looks brown colored and sometimes there are semi solids floating in the toilet bowl, but not yellow. She even had some little rabbit sized pellets as well. She has tried some anti-diarrhea meds to help alleviate, as her doc said it might help. She basically eats wheat toast, saltines, apple sauce, eggs occasionally and mashed potatoes. Drinks gatorade and water.
My questions are:
1. Is she eating the correct things and what else should she try that you might have had success with? I see the lists of food, soluble fiber and so on, but what has worked the best for you? Her last ER visit she asked when she could start eating normal again and the Doc said she could now, basically. During those four days I know she ate some cookies, she had a sausage muffin egg and also a hamburger patty and some corn. Was that too soon and could it have started her issues again? I've talked to her about trying different foods, but of course when I mention that it is usually when her stomach is upset and food is the last thing she is thinking about. Should she try to eat more even if her stomach is bothering her? What can make her poop more solid?
2. Should she drink more fluids and how much have you consumed to help? Its around 60 oz a day.
3. Is it normal for her to go back and forth, feel better and then not feel better? I've seen online, which is so difficult to navigate because of varying opinions and information (although a majority of it says the same thing), that even if you tested negative, which she did, you can have issues for days, weeks and even months. I'm sure she has seen "years" herself and that is an extremely horrible outcome to witness or read about.
4. Does sleeping upright or at an incline and not flat on the back help?
I don't think she would ever join a message board like this, so I am joining to try and help her get some information because it always seems like she doesn't get enough. I know how crappy (pun not intended) this disease is by seeing peoples journeys online and watching her struggles.
I try to tell her to keep positive and have a fighters mentality, to do whatever she can to help her feel better and try and do some different things.
If I can get some answers to my questions, that would be great and if I can get any other suggestions to help her that would be great. ANYTHING different for her to try to help. Please.