← Return to Now Receiving GammaGard Bi-Weekly Infusions

Discussion

Now Receiving GammaGard Bi-Weekly Infusions

Autoimmune Diseases | Last Active: Aug 22, 2024 | Replies (27)

Comment receiving replies
@suetex

Thank you so much for your reply. I had been on Plaquenil but my rheummy had me stop it when I didn't respond to the IvIg. So it probably wasn't that but I could have had a bad reaction to it. Your experience is what I needed to hear. (I case I need to "steer" the new doc.) I hope the knowledge was helpful to you and you are doing better.

Jump to this post


Replies to "Thank you so much for your reply. I had been on Plaquenil but my rheummy had..."

in reply to @slkanowitz Yes. And to quote my immunologist, "this is an assault" on your body, and "transient muscle weakness" is one of the biggest side effects of the IVIG, which "may or may not wear off over time." To that end, I am going to try one more month of the treatment, and then I will make a decision whether or not to continue. I am too active of a person, and laying around most of the time has been difficult at best for me. This is the kind of stuff that doctors/pharmaceutical companies do not tell patients. I suppose I had to experience "it" in order to understand perhaps I do not want this "life saving" treatment.