@sophiarose
I’m sorry you’re having such a rough time with treatment. I have been taking the 28 day octreotide injections for 3.5 years and have side effects but don’t feel sick. If you are taking PRRT treatments (make people feel sick) and octreotide at the same time, how do you know which side effects are from octreotide?

Something to consider: Be sure to check insurance coverage for home injections. My octreotide injections are very expensive but since they are given by the oncology office they are covered under Medicare part B and my supplement plan so paid in full as medical services. If I did home injections, I would think it would now be under part D prescription drugs and would be an expensive copay. I’m also reading it may not even be covered under the drug plan. Don’t know which insurance you have, but you don’t want financial surprises.

I would also think if the medication level is at an effective dose, that level would be the same for daily or 28 day injections and cause the same side effects. I don’t know for sure so just food for thought. Maybe you’re just thinking you could stop and get it out of your system faster. Prayers for you.