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Wondering if I'm taking the right path...

Breast Cancer | Last Active: Aug 23 8:48am | Replies (33)

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@drummergirl

I would question the assessment that a mastectomy does not change anything. I only heard about lympho vascular invasion post surgery and was told by my oncologist at JohnsHopkins that it was good that I did the double mastectomy as it removed all that tissue, as I had a small amount of it. I also had some microscopic DCIS that got removed with the tissue. I feel positive about my choice. I also did not reconstruct and I feel that it will be easier for me to detect any changes.

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Replies to "I would question the assessment that a mastectomy does not change anything. I only heard about..."

I agree it's a personal decision. They explained that no matter how good the surgeon - there is still some breast tissue left behind by the muscle wall. They also had a study of 10,000 nurses that showed the (people with similar cancers) had 2 groups and 1 group chose mastectomy & one did not, that the reoccurrence rate was the same in both groups. This was a panel of highly respected surgeons, oncologists, etc. from the Omaha area. They said the 4 places it most likely came back in was the brain, bones, liver & lungs. Statistically, it did not come back in the breast as you would expect it to. I was also surprised with this information. This was in 2019. My tumor was right up against the chest wall. I had already chosen a lumpectomy & did not have the BRACA gene. I'm sure each person is different.