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Fibromyalgia help/questios

Fibromyalgia | Last Active: Sep 1 11:34am | Replies (36)

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@thenazareneshul

I think you mean cyclobenzaprine? I take 10 mg, 3 times per day, and have since (maybe) 2012. Seriously, when I go to bed early, and take my last daily dose early, once it wears off, I wake with major foot cramps that I can only make go away by getting out of bed and standing on my feet. It's not a controlled substance but there's some weird strange info out there, that it works only for 14 days. And garbage that it can be psychologically dependent. Tell that to those born with spasms. I've gone off it 3-4 times, mostly because we did a lot of travelling and I had trouble getting it refilled/rewritten a couple times. Every time, my leg would cripple up and the foot turn in. It's not a joke and that's not even beginning to describe the pain. I actually wait until 3 days off so that the ER doctors can see it for themselves. The next time some doctor gives me grief about refilling it, I'm asking for a referral to a Clinical Pharmacist to see if there are any other prescriptions (that I've not yet tried) which would also fight the spasticity. I have chemical allergies galore. The other drugs for it are baclofen and Tizanidine. Baclofen made me vomit until it was dry heaving until it finally wore off. Tizanidine made me fall asleep while I was still standing up and walking (no joke). But hey, one of those might work for you or they wouldn't have tried me on them, instead. I don't know about any others. While we were in the UK, a Pharmacist there told me they use Valium on people there, instead. I know, that's a bit weird.

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Replies to "I think you mean cyclobenzaprine? I take 10 mg, 3 times per day, and have since..."

I feel like crying after reading this. There is no excuse for doctors not following their patients closely enough to see their condition and true suffering. It comes down to a lack of empathy and compassion. The symptoms and pain are exhausting, life-changing.
My heart goes out to those who are struggling with this.