1. < Autoimmune Diseases

Multiple Auto-immune Diseases ?

Posted by annelia @annelia, Aug 11 5:42pm

Hello .. I am new here so diving right in looking for others that have multiple auto-immune diseases .
Addison's, RA, fibromyalgia, tinnitus, alopecia, degenerative disc disease, A-Fib, MVP minor, osteo- arthritis, diverticulosis, Raynaud's
It just seems to go on and on but some how ? it would help to know if there are other people out there that have so many tag along diseases. Strangely enough I had thyroid problems, hypothyroid, for over 18 years and suddenly it just STOPPED .. had been taking Synthroid all that time and then the endocrinologist said I could stop taking the Synthroid, boom, just like that. How weird is that ?
In any case .. if anyone is out there that has or is experiencing anything similar please reply .. Is Addison's (Primary, auto-immune) really that rare ? I've only had one crises so far, 2010 and wow, I didn't realize how dangerous that was (caused by gastro bug) Thanks for any replies.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

annelia | @annelia | Aug 14 8:35am
In reply to @casey1002 "👋 Hi- I’m at Mayo doing the same thing for so many autoimmune diseases. Half of..." + (show)
@casey1002

👋 Hi-
I’m at Mayo doing the same thing for so many autoimmune diseases. Half of the things you listed I also have on top of many other things. Hope all goes well.

Jump to this post

Thank you .. hope your journey goes well also.

REPLY
meg8 | @meg8 | Aug 14 10:19am
In reply to @annelia "Thank you for your reply Margaret .. no one ever has just one disease any more...." + (show)
@annelia

Thank you for your reply Margaret .. no one ever has just one disease any more.
Hope you feel better

Jump to this post

Thank you very much, Actually, I do quite well to have all these diseases. All of them are managed well by my rheumatologist and myself. Rest is mist important.

REPLY
sharing | @sharing | Aug 14 10:32am

Hi…I just read somewhere that hypothyroidism MAY resolve itself in time.

Now, I have SLE and Hashimoto’s, not sure if autoimmune hypothyroidism works that way.

Check into it! Hoppe this helps🙀❤️

REPLY
nativargas | @nativargas | Aug 17 8:10pm

Hi @annelia annelia
Im 36, I have:
HIA, 12 years old / now cirrhosis
Hypothyroidism Hashimoto 26 years
Sorgren 28 years old.

I’ve discover always is one the stronger than others. In my case is HIA.
Actually I want to open a support group in my country *Colombia* trying to support people with autoimmune diseases, but don’t have access for a good health system.

REPLY
1 reply
meg8 | @meg8 | Aug 19 7:32am
In reply to @nativargas "Hi @annelia annelia Im 36, I have: HIA, 12 years old / now cirrhosis Hypothyroidism Hashimoto..." + (show)
@nativargas

Hi @annelia annelia
Im 36, I have:
HIA, 12 years old / now cirrhosis
Hypothyroidism Hashimoto 26 years
Sorgren 28 years old.

I’ve discover always is one the stronger than others. In my case is HIA.
Actually I want to open a support group in my country *Colombia* trying to support people with autoimmune diseases, but don’t have access for a good health system.

Jump to this post

What is HIA?

REPLY
1 reply
twinsgyros | @twinsgyros | Aug 19 4:23pm

Hello and welcome. My wife has, Sjogrens, Lupus and Hashimotos (hypothyroid). Her thyroid med is Armour, which works well. She still has to go in once a year for an ultrasound to make sure the thyroid doesn't get goiters (small tumors). You have quite a list and wish you nothing but the best. AI is no fun at all. God Bless.

REPLY
1 reply
annelia | @annelia | Aug 19 4:54pm

Hello there .. Lupus on it's own is a serious disease .. but these "add ons" can make life a little more miserable as well . I have nodules on my thyroid so they have to be watched for growth .. it seems you think you have one under control , then others start misbehaving ... it is always something ? LOL
Hope all goes well with your wife !

REPLY
normajean77 | @normajean77 | Aug 20 6:31pm

I have 5 autoimmune diseases. MS, Grave’s Disease ( Thyroid), Sjogren’s Syndrome, Addison’s Disease, Psoriatic arthritis. The most difficult one to diagnose was Addison’s. That was many, many visits to ER for vomiting and 40 lb weight loss. It went on almost 2 years and I was very sick. I was seen by multiple Dr’s and all they would do is treat the symptoms, IV hydration and send me home. Not ONE ever thought of giving me a simple blood test to rule out Addison’s. I had every symptom listed in its description, a classic case, yet not one Dr knew what was wrong. Then, I went to Mayo Clinic as advised by my brother. I was there 1 day and a Neurologist ( not even his wheelhouse) recognized a rash on my back. He ordered the right blood test and we had the proper diagnosis! I am forever grateful to Mayo Clinic, especially that astute Neurologist that saved my life. I was so bad, I ended up in the ER at St Mary’s right next to Mayo Clinic. They saved my life!

REPLY
normajean77 | @normajean77 | Aug 20 6:34pm
In reply to @twinsgyros "Hello and welcome. My wife has, Sjogrens, Lupus and Hashimotos (hypothyroid). Her thyroid med is Armour,..." + (show)
@twinsgyros

Hello and welcome. My wife has, Sjogrens, Lupus and Hashimotos (hypothyroid). Her thyroid med is Armour, which works well. She still has to go in once a year for an ultrasound to make sure the thyroid doesn't get goiters (small tumors). You have quite a list and wish you nothing but the best. AI is no fun at all. God Bless.

Jump to this post

It seems those 3 autoimmune diseases travel together.

REPLY
View MoreView Less
Please sign in or register to post a reply.