← Return to Anyone else has been diagnosed with central sensitization syndrome?

Discussion
Comment receiving replies
@windyshores

@paininthescap glad you mentioned trigger point injections and dry needling. I had bad reactions (pain) to lidocaine injections. The worst was on the bottom of my scalp for occipital neuralgia. The result was intense pain in scalp, down neck, shoulder, arm, side of back and around to ribs- all on the left side. I thought I was dying with the pressure and pain in chest.

Nice MD tried injecting very tight muscle knots in shoulder blade and pain increased a lot. He was disheartened- expected it to help.

I have had doctors say "Can't think of why that would happen" when I describe the spread of pain throughout the left side of my body as well as up and down my entire spine.

PT is afraid of my fragility and does massage, the one thing that helps- but only while it is going on.

I cannot take NSAID's due to kidneys. I am giving up on neuro and going to pain mgmt. I finally got a diagnosis of centralization after years of wondering, though I have had central migraine and central vertigo on my record for a long time.

Sorry for your pain!

Jump to this post


Replies to "@paininthescap glad you mentioned trigger point injections and dry needling. I had bad reactions (pain) to..."

OMG! I am reminded by your situation that I’m not alone. I didn’t mention it but I have tried every known pain meds and truthfully, nothing helped. Not the Belbuca, Oxycodon, Fentynal and the list goes on. I have run through almost every other treatment and nerve blocks including nerve ablation. Because I failed the nerve block twice, I was not allowed to try an implant. There is one thing I do want to share that has come up twice this year. The off-label use of Naltrexone is said to work miracles for some chronic pain. Because this is the drug of choice to help addicts break the cycle of alcohol and drugs, it can not be used in connection with any opioid. Research it thoroughly and discuss it with your current doctor before going to pain management. Please note, my pain is too horrible to go 4 to 7 days with nothing but advil and a muscle relaxer, so I couldn’t try it. I did try and went 48 hours and literally would rather have died then to be in that much pain. My PM docs have ZERO experience with Naltrexone and left it up to me to research with no assistance. I’m a great researcher but for off-label use, I really need an informed and experienced doctor. You’ll see videos were the physicians will approach long term chronic pain being treated with opioids differently. So just make the best informed decision for you. FYI: You’ll see the off-label usage for a very long list of illnesses. This drug has been around since the 1960’s and approved in the 1980’s, but there hasn’t been meaningful research on chronic pain to date. If you try it and it works, please let me know. Hang in there, this is not fun, but I will suffer here in this life, to free my soul for a high vibration and better life out of this very flimsy body.