I was diagnosed with Systemic Sclerosis in June of 2023. At the time I lived in TN and the rheumatologist I was referred to wasn’t very knowledgeable in treating my condition. They found that I had esophageal dysfunction and pulmonary fibrosis as well as microstomia and other facial changes. In March of this year I moved to Ga. Since then my condition has worsened. My ILD has progressed, I have severe GI problems now and I’ve lost the padding in the bottom of my feet. Walking is almost impossible. I no longer recognize myself due to the facial changes.