← Return to HNSCC spread to lungs

Discussion

HNSCC spread to lungs

Head & Neck Cancer | Last Active: Aug 20 5:48pm | Replies (3)

Comment receiving replies
@sepdvm

Hello @kathyheidt. I’m so sorry to hear of your new Mets. I also have metastatic SCC from skin origin in my ear. My first met was to my lung. Via a VATS procedure that was removed as was the next one 2 years later. They don’t give a very long prognosis once lung metastasis but I am here 12 years later after additional mets to muscle and kidney. Cemiplimab cleared my kidney and lymphatic disease so far after two years on it. I understand that it has better results in skin origin SCC rather than mucous membrane. Perhaps Keytruda or a different immunotherapy could be a discussion with your oncologist? They are using some combo treatments in trials also. Have you considered a second opinion? Do you have a major cancer of referral center nearby? We drive 10 hours from Ohio to MN for cancer tx at Mayo Clinic and I believe that is why I am alive today. I also use immune supplements and an immune therapy daily. Send me a private message if you want more information. Stay positive and keep advocating for your best level of medical care.

Jump to this post


Replies to "Hello @kathyheidt. I’m so sorry to hear of your new Mets. I also have metastatic SCC..."

Thank uou! I am so happy it has worked for you! I am at Sloane Kettering in nyc. They are going to do a biopsy to doublecheck bc the immunotherapy has also caused pneumonititis in the lungs msg. Fingers crossed. They will then decide to ho back on cem or other types of treatment. I was on a clinical trial for neoadjuvant therapy with chemo and cem and it had worked great, clear margins in major maxillectomy. So may twists and turns with surgical complications and now this. If ok may reach out if u think extra immune boosters may help?