Chronic severe nocturnal hypnic headaches

Unable to find your posts but went to the Shifa web site. Does your wife use the Shifa company tea or another company’s Shifa? Thanks

Good morning. I'm new to this group for nocturnal hypnic headaches. My headaches (migraines actually) began only a few weeks ago. Working with my family doctor for a diagnosis/treatment. The occurrence is nightly around the same time, approximately 2-3 hours after going to sleep (I'm a 73 year old male, using a CPAP machine for years now. Can't seem to figure out how to post a general question to this group for comment and reply. Hoping you can direct me to the link. Thank you
Post note; I'm finding caffeine, walking daily as well as this 4 point exercise to help. Hope it helps you and others as well: Sorry, as new member "they" will not allow me to post a link yet. "Attention Required
Your message cannot be posted. To protect against unwanted spam, newly registered members are not eligible to post messages that include links and URLs. Please try again without links, try again in a few days or contact support."

Good morning. I'm new to this group for nocturnal hypnic headaches. My headaches (migraines actually) began only a few weeks ago. Working with my family doctor for a diagnosis/treatment. The occurrence is nightly around the same time, approximately 2-3 hours after going to sleep (I'm a 73 year old male, using a CPAP machine for years now. Can't seem to figure out how to post a general question to this group for comment and reply. Hoping you can direct me to the link. Thank you
Post note; I'm finding caffeine, walking daily as well as this 4 point exercise to help. Hope it helps you and others as well: Sorry, as new member "they" will not allow me to post a link yet. "Attention Required
Your message cannot be posted. To protect against unwanted spam, newly registered members are not eligible to post messages that include links and URLs. Please try again without links, try again in a few days or contact support."

@gej95014 Welcome to Mayo Clinic Connect. It sounds like you are seeking proper care for your nocturnal hypnic headaches but you are still unsure why you are having the headaches and how to treat them. Did I get that right?

As a new member there is a waiting period before you post a link. We do this to protect members from unwanted spammers. I know it is frustrating. You can post a new discussion without links.

May I ask what question you want to post to the group?

@gej95014 Welcome to Mayo Clinic Connect. It sounds like you are seeking proper care for your nocturnal hypnic headaches but you are still unsure why you are having the headaches and how to treat them. Did I get that right?

As a new member there is a waiting period before you post a link. We do this to protect members from unwanted spammers. I know it is frustrating. You can post a new discussion without links.

May I ask what question you want to post to the group?

Yes you have it right. My family practitioner has finally referred me to a neurologist for a video visit today at 4pm. We'll see. This is the question: how do I discover what is causing the hypnic migraines? Treatment can be a good thing; but, seeking the root cause so I can work on that is IMHO a good direction. Medications to date aren't helping. In fact IMHO they have made the situation worse. They've put me on anti-depressants (Zoloft first, then Lexapro. Both made it worse), What are others' taking that helps? That is the question to the group. To me; discovering the cause and working on that is the priority. Was it something I did? Something I'm doing? Something I'm taking? Something I took in the past?

Yes you have it right. My family practitioner has finally referred me to a neurologist for a video visit today at 4pm. We'll see. This is the question: how do I discover what is causing the hypnic migraines? Treatment can be a good thing; but, seeking the root cause so I can work on that is IMHO a good direction. Medications to date aren't helping. In fact IMHO they have made the situation worse. They've put me on anti-depressants (Zoloft first, then Lexapro. Both made it worse), What are others' taking that helps? That is the question to the group. To me; discovering the cause and working on that is the priority. Was it something I did? Something I'm doing? Something I'm taking? Something I took in the past?

There appears to be a mix-up. I did not post to this thread. It seems to be a male person who did.

My bought with these horrible nocturnal hypnic headaches came on 2 years ago in the early fall. I was desperate to find the answers you seek and any relief I could find. Unfortunately, I never could confirm the source, but after trying many of the drugs, caffeine, melatonin, etc., my neurologist gave me a steroid step down prescription late December and by mid January they stopped. I only had 1 or 2 milder episodes in the following month and nothing after. My neurologist hypothesized that a nerve had been irritated and that the steroid calmed it back down. Hope this helps you. Truly the most frightening and painful thing I’d experienced (outside of childbirth!). Good luck!

I also get hypnic headaches. I find that mine can be seasonal. They seem to get worse when the amount of sunlight gets less. My opinion is that it has something to do, then, with melatonin. When mine ramp up again in the fall of the year, I take melatonin. Currently I’m taking 5 mg. of melatonin. I have gradually gone up to 15 mg. in the past with my neurologist’s blessing. I also take gabapentin. I also adjust that slightly up or down depending on my needs. Sometimes a strong 1/2 cup of coffee before bed also helps. Don’t expect a lot of help from your neurologist. These headaches are rare and they likely have not treated many patients with them. Best of luck to you. These headaches are miserable.