Does anyone know of bruising as a progressing symptom of mgus to MM?

Posted by jzeee @jzeee, Aug 17 8:20am

I am 42, diagnosed with Mgus IgA 2 years ago. My numbers are just below shouldering myeloma and now being followed every 6 months at Emory. I just had random bruising appear on my upper arms on both sides and they were noticed by others asking about them. I don’t really do anything that would warrant bruising and curious if this is something I should send to my doctor. Just got my new numbers a month ago and they were pretty steady (small increase). I’ve had no bone pain, some fatigue (a nap most days if possible). Thanks for all of your sharing your stories, grateful for you as a man in my 40s on the mgus journey. Thanks friends!

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@jzeee Welcome to Mayo Clinic Connect! You'll find a lot of support and information here, with fellow members who live with MGUS, smoldering myeloma, and active myeloma.

There seems to be a constellation of different symptoms that can come along with MGUS/not quite smoldering multiple myeloma. Some people experience a few of these, some may deal with more. Each person is unique, and it bears to remember that. Here is an article from the Leukemia and Lymphoma Society, that shows easy bruising may be present in MGUS. I would encourage you to check in with your doctor, and let them know. I am an active myeloma patient, and get wondrous bruising on my arms all the time.
https://www.lls.org/sites/default/files/2024-06/FS40_Monoclonal_Gammopathy_MGUS_2024.pdf
Ginger

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@gingerw

@jzeee Welcome to Mayo Clinic Connect! You'll find a lot of support and information here, with fellow members who live with MGUS, smoldering myeloma, and active myeloma.

There seems to be a constellation of different symptoms that can come along with MGUS/not quite smoldering multiple myeloma. Some people experience a few of these, some may deal with more. Each person is unique, and it bears to remember that. Here is an article from the Leukemia and Lymphoma Society, that shows easy bruising may be present in MGUS. I would encourage you to check in with your doctor, and let them know. I am an active myeloma patient, and get wondrous bruising on my arms all the time.
https://www.lls.org/sites/default/files/2024-06/FS40_Monoclonal_Gammopathy_MGUS_2024.pdf
Ginger

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Thank you! That was a great article.

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Are you on any meds prescribed or over the counter?

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@jzeee
I always err to the side of caution so I would be asking my hematologist about it. What’s another stick?
I try to pay attention to messages my body may be sending me. Most of the time it’s nothing, but it doesn’t hurt to ask.
Will you let me know what you find out? It’s an interesting question.

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@kakc19

Are you on any meds prescribed or over the counter?

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No meds yet. Just finished an mgus clinical trial with rifomoxin. But that’s it.

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@jzeee

No meds yet. Just finished an mgus clinical trial with rifomoxin. But that’s it.

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Could not find the med, is the spelling correct?

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definitely misspelled :p

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@jzeee

No meds yet. Just finished an mgus clinical trial with rifomoxin. But that’s it.

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Under Mayo Clinic
“Less common side effect is bruising under skin”

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@gingerw

@jzeee Welcome to Mayo Clinic Connect! You'll find a lot of support and information here, with fellow members who live with MGUS, smoldering myeloma, and active myeloma.

There seems to be a constellation of different symptoms that can come along with MGUS/not quite smoldering multiple myeloma. Some people experience a few of these, some may deal with more. Each person is unique, and it bears to remember that. Here is an article from the Leukemia and Lymphoma Society, that shows easy bruising may be present in MGUS. I would encourage you to check in with your doctor, and let them know. I am an active myeloma patient, and get wondrous bruising on my arms all the time.
https://www.lls.org/sites/default/files/2024-06/FS40_Monoclonal_Gammopathy_MGUS_2024.pdf
Ginger

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Great article @gingerw. I am three years into my MGUS journey and hadn’t read that one. I’m not sure if you and others here have experienced the following. Do most of the hematologists out there continue to state there should be no symptoms with MGUS? The two I have had (I asked to be transferred to one closer to my home) tell me the above. And yet when I have read so many comments over the years in this forum it seems so many are experiencing symptoms. For me, it it always the unknown that is most difficult to accept. If you have an illness/pain/symptom and have a name and diagnosis, you can move forward with treatment and a game plan or at least acceptance When you are told that MGUS does not cause symptoms, it becomes a never ending list of other doctor/specialist appointments trying to figure out what is causing the symptom. Then, if all the other specialists tell you they could not find anything wrong, you are left with the feeling that it must be the MGUS.

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