Connect
ongoing pain 1+ years post-whipple
My spouse was dx with pancreatic cancer almost 2 years ago. 2cm, no lymph node involvement. He had 7 rounds of FULFIRONOX prior to his Whipple last April, and 5 more rounds after that. He finished his chemo in Sept/Oct of last year.
He continues to have daily pain (more or less, depending on the day or part of day), which seems to be as the feces moves through his intestines. All his scans have been clear. He takes CREON with his food and has tried different doses in consultation with his nutritionist and it hasn't really changed the pain. The oncologist and surgical team have all said there's nothing wrong from their perspective. But this is definitely impacting his quality life.
For those of you who have been this far out from your Whipple or farther, is this similar to your experience? How long post-Whipple/post-chemo did the pain continue?
Like
Helpful
HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect
I’m so sorry that your husband is going through this! I chose not to have any treatments …. don’t think I will change my mind.
I’m praying that he gets some relief! This pain is 3 - 4 times worse than a woman’s monthly friend!
-
Like -
Helpful -
Hug
3 ReactionsExactly what type of pain is he having… and where is the pain? I ask because those of us who have had the Whipple certainly experienced some pain but it may not have been in the same places.
The pain is in the abdomen. He says it feels like it is caused by the feces moving through the intestines, so the pain moves as the feces move. And it can get worse for a while and then as stuff moves to another place it can get better.
I’m not sure what that pain is. My pain always came and still happens sometimes when I either eat too much at a sitting or consume too much sugary food. My pain is a cramping at the top of my stomach. At times it can take me down for 15-30 mins. It always goes away as my stomach eventually digests the food. My Whipple was in June 2023 and my last chemo treatment was Nov 2023. The pain I experienced was even worse while I was going through my treatments. It would occur almost every morning after breakfast. It only occurs now when I eat more than I should or I eat too much sugary foods. I hope this helps.
I am 2+ years out post Whipple and I still get pain across upper abdomen, under my ribs.
Luckily it only lasts a few minutes but is very intense.
I can’t link it to anything, but in past it was after spicy food, so thinking it’s gas build up?