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Younger than usual with severe osteoporosis
Osteoporosis & Bone Health | Last Active: Aug 21 6:28pm | Replies (55)Comment receiving replies
I'm glad you're here, but feel the same way--I wish it wasn't because we have OP.
A lot has happened since I started this thread. I learned so much about the condition and treatments, both natural and pharmaceutical, and I decided that my bone loss was significant enough that I needed meds.
I did finally get approved for Evenity, an anabolic (grows bone). Fortunately, I had had only had one Prolia injection.. Anymore than that, and it wouldn't have been so easy to change course. I've now had 7 of 12 sets of monthly Evenity injections. Fingers-crossed I get good results.
Like @bcstephens, I don't want to spend the next 40+ years "...being so careful to not fracture something and restrict myself from doing the activities and exercises I love."
That being said, I have had to weigh the risks of some activities, and make decisions about what I feel I can safely do.
As far as weight bearing exercises, they are good for bones, but must be done safely with supervision by someone who has had special training on working with people with OP. Impact training is even more important. It's what stimulates bone growth. Again, it requires supervision by a trained professional. These things can be done safely, and they DO work
(https://connect.mayoclinic.org/discussion/onerno-exercise-based-program-proven-to-work/)
This group has a wealth of information and experience. Dig deep into the coversations, and learn all that you can so you can make the best decision for your treatment.
Replies to "I'm glad you're here, but feel the same way--I wish it wasn't because we have OP...."
Thank you for sharing your experience as well as the link about ornerno. I will look into it. Were you already on meds before you started Prolia (which I know you had just once) and then Evenity? Is there a plan for what happens after your 12 Evenity injections are done?
My fingers are crossed for you.
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I was diagnosed when I was 42 with osteoporosis as was my mom and my grandma. All very early in our 40’s. I ended up at the Mayo thank goodness and after many pills nothing would work. I did Tymlos for 2 years and finished that in December 2023. I did my first yearly injection of reclast in January 2024 and we will see what happens. I have learned that I had to spend a lot less time worrying about the effects and side effects and look at what the meds could do for me for the next 40+ years of my life. I also learned to watch what I read and decide what information to worry about. You need to trust your doctors and make sure you do what you can but don’t stop your life. It’s so hard but now I just hope and pray that this route is the best one for me!!