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Scleroderma (Systemic Sclerosis): Anyone else?
Autoimmune Diseases | Last Active: Jun 6 10:18am | Replies (93)Comment receiving replies
I was Diagnosed back in February with scleroderma, Sjogrens and ILD. Positive ANA positive Scl 70
They started me on Prednisone, Cellcept and Retuxamab infusion. It was May I did first round of infusion. My CT last week showed mild progression. I don’t know what to think. Should I be seeing something different on the scans.
Replies to "I was Diagnosed back in February with scleroderma, Sjogrens and ILD. Positive ANA positive Scl 70..."
Sorry to hear about your disease progression. It has been only 3 months since your first treatment. It may take more time and more treatments to see positive results.
Your post is going back to August of 2024. How have you been since then? Did Rituximab plus Cellcept work better for you over time?
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Hi Robin, I’m Kim. I was diagnosed with SSc in June of 23 and also have ILD. Unfortunately the rheumy I was seeing wasn’t very knowledgeable and I didn’t receive the appropriate treatment for over a year. I’ve been on methotrexate since diagnosis and started Cellcept 3 months ago. I’m also continuing to progress. I’m actually still trying to get to a dr that really knows how to treat me. I was finally referred to Mayo Clinic last week.