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← Return to Prolia and its side effects.
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EXACTLY. I have a similar issue. started Prolea 7 years ago without issues and hear the same …it is forever,! IF there were improvements on scans is one thing, but very little improvement on scans,….until now after last 2 injections having severe fatigue and sleeping 11-12 hours a night with some days an afternoon nap thrown in for good measure. I would not have taken Prolea at all but was/ continue to be told it’s the greatest since apple pie and I can never stop! It is NOT ! I want to get off because this fatigue is not the quality of life I desire. Big Pharma again and no recourse! There SHOULD be but too much money being made. Thoughts?
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9081316/
Regulatory capture has the FDA approving pharmaceuticals before their harms are known. The pharmaceutical companies siphon off our best physicians for research, and then waylay the rest with sophisticated advertising. We pay for the research with our taxes, we pay for the doctors with our insurance and we pay for the medications with our bones.
My doctor strongly advised against Prolia saying if you get on it you need to take it the rest of your life because if you get off your bones will literally crumble. I read another on here testify to that just missing her dose of Prolia for two months and she had numerous new fractures.
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I’m sorry to hear that you’re having difficulties with Prolia, @shani. Through others’ posts on this forum, I seem to remember reading that one can get off of Prolia; it’s been described as a difficult process, but perhaps one you’re willing to attack. Some other members will likely respond to your message and give you some insight into what they know about the subject.
Unfortunately, we do need these meds and, like you and so many others, it’s a quality of life issue for me. Do I like it - hell NO - docs should be more upfront and we need to be more informed about what they’re prescribing and the ramifications of the meds going forward. I think the lifetime limit for Reclast was discovered some time after I had my first infusion.
Wishing you the best! Cheers!