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What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Blood Cancers & Disorders | Last Active: Aug 20 8:10am | Replies (17)Comment receiving replies
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I have Polycythemia Vera not sure how long however I noticed my cells were increasing with each semi annual blood draw..The doctor attributed to dehydration. Finally my blood numbers kept going higher and I knew I wasn't dehydrated so I went to a Hematologist, he knew immediately I had PV although he did have the Jk2 done and it was positive. I'm 74 at the time and he told me I caught it early. The hydroxurea was delayed because of a carotid stunting. I started on the hydrox (Know I was treated for hypertension my entire adult life..after on hydroxurea approx 4 months my adrenal gland hormones dropped causing my blood pressure to drop. dastrically... ive gone from 80 of valsartan twice a day to none. has anyone on hydra had adrenal fatigue or insufficiency....? I'm desperate...any positive or negative would be productive.
Replies to "New subject. I have Polycythemia Vera not sure how long however I noticed my cells were..."
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I can relate to the low adrenal function. I am 48, diagnosed with PV last year, Jak 2 positive. I started on hydroxyurea last fall, then switched to Jakafi earlier this year. Jakafi took away the need for monthly phlebotomy and the constant hot flashes. Also, I do not have a thyroid so I'm constantly shifting thyroid doses depending on my thyroid lab results. I am tired all the time. I have 5 kids ranging from 21 yrs down to 11 year old twins. I do not like the idea of taking medication, but it does help keep the cancer under control. I will ask my oncologist at my next appointment about how to address adrenal fatigue in the midst of all of this. The best thing is that I know I am not alone as I walk through this. So thankful for this very informative message board!