← Return to Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

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@sunflower88

My spouse was diagnosed with ICC - Bile Duct Cancer. He had a liver resection due to a malignant tumor on the left lobe of his liver which was done on 6/24/24. His team of doctors came up with the plan to perform an MRI on his abdomen, chest x-ray and lab work every 3 months. However, the appointments are every 2 months. First one is on 8/31/24, next one scheduled on 10/23/24. Bile Duct Cancer is rare and has a high recurrence rate, that is why the MRI’s, chest x-ray and lab work is scheduled. He recently started taking an oral chemo drug called Capecitabine 500 mg. He takes 4 pills within 30 minutes after breakfast and 4 more pills within 30 minutes after dinner. No bad reactions so far but this is only day 4 for the chemo. Bile Duct Cancer caught early, Stage 1B / Grade 2.

Is anyone else taking this chemo drug where you can share your experience? He will be on chemo for 6 months. Will take chemo twice a day for 2 weeks, then 1 week no chemo, this will be repetitive with 2 weeks on and 1 week off for 6 months.

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Replies to "My spouse was diagnosed with ICC - Bile Duct Cancer. He had a liver resection due..."

Dear Sunflower 88:

In preparation for potentially curative surgery in October for extrahepatic bile duct cancer (distal cholangiocarcinoma), I have twenty-eight daily radiation/oral chemo treatments Monday through Friday (M-F).

The oral chemo is Capcetabine/Xenoda (3 x 500 mg in AM; 4 x 500 mg in PM). I have completed twelve treatments and have sixteen to go with no apparent side effects.

Treatments before the radiation/Capecitabine included ten biweekly chemo infusions (Gemcitabine, Abraxine, Cisplatin). Hair loss was the only side effect of the infusions.

Wishing you and your husband the very best.

Dan