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DiscussionMeet fellow Caregivers - Introduce yourself
Caregivers | Last Active: Nov 12, 2023 | Replies (707)Comment receiving replies
Replies to "Thanks very much for your suggestions. I don't think my wife is really capable anymore of..."
Hi @djangomay2 Nice to have you here in the Mayo Connect caregiving discussion group. I'm Scott and I was my wife's caregiver during her 14+ year war with brain cancer. I also was a secondary caregiver for my mother-in-law who had dementia and lived in St. Paul.
I agree it is terribly difficult to find resources, get a quality check on them, and utilize them -- often blindly. I, too, found little of help since my wife was too young for Medicare and we didn't qualify for Medicaid. It was far too much trial and error and monitoring. Often with truly crummy results.
While every patient and disease path is unique, I know in my wife's case I had to 'go with her flow' on what she was interested in doing or capable of doing. We'd had pets our entire married lives, but they quickly became too intrusive for her as did TV, radio, music, visitors, etc. I ended up with loads of books, kits, etc. that never hit their mark and remained unopened.
Let me know if I can help with any specific questions you might have.
Strength, courage, and peace