Fibromyalgia help/questios

Posted by clararose @clararose, Aug 16 10:37am

I have never written about me before, or asked a question. Here goes, I feel alone with this issue, I know anyone who has it or really knows what it is like. Overwhelmed with exhaustion, body aches like a bad flu, brain fog, I suffer from severe migraines. Leg weakness/dizziness (this could be due to something else?). I am looking for some advice and suggestions please.

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@clararose

Thank you for sharing, I hope that your new GP has a good understanding of fibro and chronic pain.
Dealing with pain makes you so tired and it saps all of your energy. I hope that you will be feeling much better very soon. I am a proponent of sports drinks with the electrolytes in them. Staying hydrated is so important. Stay well.

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Hi
Yes I do hydralyte tablets they are effervescent. There is no crap in them very low sugar. You can get them on Amazon. My pharmacist suggested them

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@sue417

Hi
Yes I do hydralyte tablets they are effervescent. There is no crap in them very low sugar. You can get them on Amazon. My pharmacist suggested them

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I will look into them! Sounds handy. Stay well.
😊

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I have had fibromyalgia for 28 years, and I control it with supplements. I can no longer take Western Medicine due to severe allergies to the fillers in the prescriptions. I use Quercetin 500mg 2 x day, Vitamin C 2500 mg daily, Boswellia capsules to help with pain 2 capsules 3 times a day, various minerals and Vitamin B shots every other week - I give myself the shots, Magnesium Glycinate 1 1/2 tablets at bedtime. This regimen has kept me out of severe flareups - the flareups I get now are mostly caused by me overdoing things. I hope this helps.

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@sue417

Hi
Prior to cymbalta I was on cyclobenzaprine it's a muscle relaxer also helps with pain. After knee surgery my pain was intolerable and cymbalta was used to control it. It's a fibro med. I only needed it to recover from surgery. Then I went back on cyclobenzaorine As you know, fibro comes and goes I have had it since the age of.
Mid twenties so. Mine is Controlled by Supplementation and c b d/cbn oil and advil plus. Since going thru radiation therapy i have severe fatigue and sleep issues. Waiting on my new gp to decide what to try.

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Do you take the cyclobenzaorine daily? I usually only take it during bad flares, but have pain every day but wasn't sure it was okay to take it daily. What supplements help you? I also have sleep issues so am tired every day. Thanks.

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@ripley

Do you take the cyclobenzaorine daily? I usually only take it during bad flares, but have pain every day but wasn't sure it was okay to take it daily. What supplements help you? I also have sleep issues so am tired every day. Thanks.

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Hi
I took it the 2 weeks I had radiation in apr. Prior to that hadn't taken it in 2 yrs. It makes my tinnitus worse. Originally I was on it 5mg every night for 5 yrs. Currently looking for new med with new physician. For fatigue and sleep & anxiety. Been a rough 6 mths. I more so have tight muscles cramps in the night and restless sleep. Currently just doing CBD/CBN oil . MAGNESIUM GLYCINATE 200MG at bedtime, Vit b complex, Vit D & k Coq10, the omegas.. I am on 6 scripts for various health issues. I do see a naturopathic dr for supplement

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@sue417

Hi
My experience multivitamins are not recommended. Magnesium glycinate 1 hr before bed. I also take a b complex by natural factors biocoenzymated Active B complex it's the easiest and fastest absorbed. I take CBD/CBN oil at bedtime for sleep. It's legal in canada I get it thru a physician. Have you tried Lyrica or cymbalta. I was on cymbalta for 2 yrs after knee surgery to settle pain from fibro it was brutal. Tough drug to get off but helped immensely. Lyrica I tried but too strong for me. Also a muscle relaxer cyclobenzaprine 5mg at bedtime helps alot to relax muscles aids in sleep, helps depression. Was on for 10yrs. They don't recommend it long term anymore. There are good stretching videos on you tube for fibromyalgia. I hope you have a good physician. A naturopathic dr is also good to add. I also was in a car accident severe neck sprained. And whiplash.

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I am like you all, I was in a car accident and also have extensive neck and back injuries. I have functional movement disorder in addition to fibromyalgia. Cymbalta and gabapentin help with the pain and tingling, itching, crawling nerve sensations. I also take a multivitamin, magnesium, B, and iron. It is a difficult road with the pain and weakness.

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@barbfe

I have had fibromyalgia for 28 years, and I control it with supplements. I can no longer take Western Medicine due to severe allergies to the fillers in the prescriptions. I use Quercetin 500mg 2 x day, Vitamin C 2500 mg daily, Boswellia capsules to help with pain 2 capsules 3 times a day, various minerals and Vitamin B shots every other week - I give myself the shots, Magnesium Glycinate 1 1/2 tablets at bedtime. This regimen has kept me out of severe flareups - the flareups I get now are mostly caused by me overdoing things. I hope this helps.

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Hi
Thks for info will check with naturopath in the boswellia. Would rather do that for pain if it doesn't interfere with my heart meds. I also do the vit c forgot to put that in my other post

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@katcollins

I am like you all, I was in a car accident and also have extensive neck and back injuries. I have functional movement disorder in addition to fibromyalgia. Cymbalta and gabapentin help with the pain and tingling, itching, crawling nerve sensations. I also take a multivitamin, magnesium, B, and iron. It is a difficult road with the pain and weakness.

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So sorry to hear about your accident and resulting issues. My car accident was many years ago and I am still dealing with the repercussions.
I will pray for you to improve soon. I have been told by two specialists that they feel that a trauma, such as that of a car accident, can cause the start of fibromyalgia. It seems to be tied to a physical trauma that the body has gone through. That’s what seems to baffle some doctors that I have been able to speak with.

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@katcollins

I am like you all, I was in a car accident and also have extensive neck and back injuries. I have functional movement disorder in addition to fibromyalgia. Cymbalta and gabapentin help with the pain and tingling, itching, crawling nerve sensations. I also take a multivitamin, magnesium, B, and iron. It is a difficult road with the pain and weakness.

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I have given up with even mentioning it to anybody. It’s something I’ve had for many years. I got so tired of the Dr looking at me with doubt.

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@barbfe

I have had fibromyalgia for 28 years, and I control it with supplements. I can no longer take Western Medicine due to severe allergies to the fillers in the prescriptions. I use Quercetin 500mg 2 x day, Vitamin C 2500 mg daily, Boswellia capsules to help with pain 2 capsules 3 times a day, various minerals and Vitamin B shots every other week - I give myself the shots, Magnesium Glycinate 1 1/2 tablets at bedtime. This regimen has kept me out of severe flareups - the flareups I get now are mostly caused by me overdoing things. I hope this helps.

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I also have fibro and was wondering how you heard about the supplements you take, were these recommended by a functional medicine doctor? Thanks.

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