Hello Sue, We’re you told to avoid multivitamins? I will try that. I am currently taking Ketorolac 20mg - up to two times daily, plus a heating blanket, when I am bedridden and the pain is unbearable. If it becomes too much - I have my husband take me to my doctor for a 60mg injection of Toradol. It does help sometimes. If I wait too long, it’s not as effective. I feel like I have the worst case of the flu &
some swelling in my hands during a bad flare, also back pains. There should be more attention paid to patients with this disease. It is debilitating & life-altering. If it is so apparent to us physically on the outside, what does this illness do to us on the inside? Has anyone ever measured that? Our organs certainly have been somehow affected by each of these flares we
truly suffer through. I wish there was a better pain management system
for sufferers - we need to be able to get on with our lives and live. I’m so happy to be neat my grandchildren and my suffering is so upsetting to me. 🥺. Thanks for sharing and listening.