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@loribmt

Now that your husband’s in Station 94, he’s in the most excellent hands! His care team there will be consistent though, you may see some different on floor doctors daily. However, they are all briefed each day as a team so they are fully aware of each patient on that floor. Hopefully all your pre-transplant jitters and scheduling ‘mis-haps’ or whatever they were are all in the past and it’s smooth sailing from here on out!

I smiled with your line “ we’ve been through a lot in life but this takes the cake.”. Ain’t that the truth!! My husband and I too…we’d been married 45 years at the time I received my transplant after the previous months of chemo. Wow, talk about a life adventure. Now we feel like we can manage anything after that!

I’ll be thinking of you both as you go through this week! The first couple of days most likely won’t change much for your husband with the pre-transplant chemo. But by day -3 or -2 he may start feeling a little more loagy…fatigued and feeling ‘off’…that’s the best way I could describe it.

Anyway, we all react differently. So as long has he’s feeling like eating and drinking, have him work on keeping up his nutrition. I think the kitchen closes at 6PM so it’s ok to order extra foods. I had meds to take in the middle of the night so I’d frequently order extra banana bread so that I had something to nibble on at midnight. Also, my husband would bring lunch or dinner that he made for me. There’s a refrigerator in the Family room off 9-4 where people can put foods if they need to. We didn’t really keep anything there because we lived less than 2 blocks from the clinic so Rick would just bring a lunch bag for me.
There’s also the snack room for transplant patients. You can make toast, there are premade sandwiches, protein powders, pudding, popsicles, etc., available 24/7.

Dorothy, are you spending most of your day in the hospital or getting out and walking around…keeping busy?

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Replies to "Now that your husband’s in Station 94, he’s in the most excellent hands! His care team..."

Lori the first three days were half hour infusions so I just stayed with him. He lets me help with his NY Times puzzles.
Yesterday was longer about four hours so I went out briefly to walk and get warm (the AC gets to me after sitting still for awhile). I don’t like to leave it makes me uneasy. Although the team is great. We have had two primary nurses but a different “practitioner” (PA or NP) every day. All seem very intelligent and competent and friendly. David is lovely with all the staff. I get a bit anxious because his condition is so complex how can they be aware of all the things? So I ask a lot of questions. The responses have all been helpful.
Transplant day Thursday. Keep us in the light.