Connect
← Return to What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Discussion
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Blood Cancers & Disorders | Last Active: Aug 20 8:10am | Replies (17)Comment receiving replies
That is foolish talk! Every case is different. I was 78 when diagnosed! I guess I am dead. Have no symptoms and taking HU for a year and a half. It seems the mutation occurs from aging…
Replies to "That is foolish talk! Every case is different. I was 78 when diagnosed! I guess I..."
Connect
My oncologist said usually between 55-65 people are diagnosed with PV. I’m so special That I was 55 😉 Some are younger yes, but that’s the average age. It’s so rare that we are low on the research ladder sadly. Just have to take your meds and keep up with your lab work to keep truckin! Grateful to not feel alone and get an occasional chat on here ❤️