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Desperately seek answer . really high kappa lambda light chain numbers
Blood Cancers & Disorders | Last Active: Oct 7 9:28am | Replies (16)Comment receiving replies
I find it interesting that the same issues seem to accompany MGUS . For what it is worth, my kappa lambda ratio is generally around 30 while the "normal" is said to be between 0.26 up to 1.65. In the past is has been over 40 but generally my MGUS has been "stable" over the last 8 years. I had some cardiac issues although I have never heard of ATTR. I was diagnosed with visible atrial fibrillation and receive treatment for that and also elevated blood pressure. I have also had recent eye (and continuing) surgery. Although somewhat older than randyb66 at 79, I gave up smoking when was 12 (67years ago), no drugs, very little drinking and spend more than 7 hours a week in exercise and am widely regarded as active. I am not diabetic.
Anything you randyb66, do should be with advice from your medical team but I recommend some focus on exercise and that should go with making sure you have medications that do not interfere with an exercise lifestyle.
Hope that helps.
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As for the ATTR. it does not surprise me that you have not heard about it. It is a very rare and very under diagnosed disorder. I knew nothing of it until I heard a PSA (Public Service Announcement) concerning it. And had I not had 9 of the 11 known symptoms I would still not know anything about it. But as I said before, the symptoms of the disorder are such that no one, not even doctors put it together that they are all caused by this one issue. Because the symptoms are so unrelated to one another. Who would ever connect carpal tunnel to heart failure. Or spinal stenosis?
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Oh please belive me, I get more than my fair share of exercise for my age. On my average day I walk 8 ro 10 miles. And that due to my job. I also do the equivalent in stair steps that range from 7 to 12 floors. And that is nearly everyday. You see, I am a delivery driver for a multimillion dollar company. Amazon. I don't know to many my age that can undertake the physical aspects I endure nearly every day.