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Immediate and severe Tymlos side effects.
Osteoporosis & Bone Health | Last Active: Dec 17, 2024 | Replies (23)Comment receiving replies
There is no secondary cause for my severe osteoporosis thats been identified. I have low thyroid and take thyroid replacement, and I cannot eat or drink dairy, so I do take Calcium regularly. Regarding Tymlos, it took about 40-minutes for the pain to recede, but I felt off for a couple days afterwards. Now I am back on Prolia, but I heard from someone who responded, that there is something scary about it that I must be missing. My doctor did not order a serum check of parathyroid hormone prior to trying Tymlos.
I've been unable to take anything else, Evenity didn't work for me either, because I quickly developed joint and muscle pain after injections, to the point it felt hard/ painful to walk.
I ready to just stop taking anything, and to try to find a new answer somewhere else. All of these drugs have awful potential side effects, and I seem to a major candidate for such.
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@anne9-5 you will need a bisphosphonate if you stop Prolia. Rebound might be gentler if you have had just 1-3 shots. (It is commonly known and I got this info from my doctor, from the book "Great Bones" and various videos). When you stop Prolia the suppressed osteoclasts that have been dormant come rushing back, so to speak. Bone density drops and fracture risk goes up. Bisphosphonates like Reclast or sometimes Fosamax are used to counteract this "rebound." I hope you can talk to your doctor about long term plans, Maybe the plan is to stay on Prolia.
I tried for years to get on meds and was finally able to take Tymlos. In my experience Tymlos was not tolerable with a full dose, but I was able to get on it by starting at a lower 1/4 dose and ramping up slowly. Not sure if it is possible to go from Prolia to Tymlos though so your doctor would have to explore that. Dr. Ben Leder discusses this in his video on YouTube.