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Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

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@jeanneted

All these things that everybody is saying is just hearsay, my father had it, my brother has it,I have it my sister has it. My daughter has it. It just goes down to genetic line in the whole family. Nothing seems to help, you think you take something and you don’t have a few years, and boom the next year you get it! I was clear since 2016. I had it for three months and was in bed for a month. It was awful the worst I’ve ever had it nothing helped. It just went away finally .I didn’t do anything different. Didn’t take anything different and boom all of a sudden I get it back bad , now 2024, just a stupid mutant gene that decides to come out whenever it feels like! Then goes away just like that!

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Replies to "All these things that everybody is saying is just hearsay, my father had it, my brother..."

These things are not hearsay. I am 67 and I was diagnosed by a punch biospy when I was 18. There were years of minor flares, but there were some very bad ones. I have seen several very good dermatologists who have kept up with the disease and we've tried different things. A burst of prednisone used to bring a flare under control, but we don't want to use that too often, especially now due to the possibility of osteopenia.
My Mom and her Dad had it. Thankfully, my brother does not and neither of my sons do, which means it stopped with me, thankfully.