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@pam62

It's been awhile since I last posted but received news from my doctor a few days ago. Not good news but not bad news. I've been on Sprycel for not quite three years. I've always hoped that one of these appointments he would say that my BCR-ABL would be all zeroes and that one day I would be able to go off medication. While my numbers stay low he said they fluctuate enough that more than likely I would be on medication for the rest of my life. Taking the Sprycel has not been horrible by any means compared to going through intravenous chemotherapy or radiation like my sister did with breast cancer but being able to say I'm in remission would have been wonderful. I can't complain because I'm here seeing my grandkids grow up and she never got to meet her last grandson. Thank you to this group for sharing and listening.

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Replies to "It's been awhile since I last posted but received news from my doctor a few days..."

Hi Pam, thank you for sharing the update! I know you were hoping for a magic disappearing act of the CML diagnosis. Dang. But it’s really positive news that the Sprycel is doing its job! Look at it like having high blood pressure or high cholesterol…chronic health conditions where we take meds with annual renewals for life. ☺️
I am sorry for the loss of your sister. Events such as those really do help us put life into perspective. So enjoy your grandkids. Do they live nearby?