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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)

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@chesneydell1965

I feel so much better hearing that someone else spouse has become kind of mean with sarcoid going to the brain . i get my feeling hurt alot.
thanks for sharing

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Replies to "I feel so much better hearing that someone else spouse has become kind of mean with..."

@chesneydell1965, so good to hear from you again. I was wondering how you were doing. I see from your short message that you have your hands and heart full with caregiving. I'm sorry to hear that your husband's disease has affected his brain function and causing him to behave negatively. It is hard to separate the actions from the person you knew. As @IndianaScott reminds us "it's the disease talking, not the person."
Do you have someone to help you and give you respite? How are your children?

@chesneydell1965 ..Heartfelt sadness in what you are experiencing. I no longer care for my husband@home..He is in a Nursing home...his frontolobal dementia seems to manifest itself with him being totally indifferent to me when I visit. It hurts. I get it. It is the disease. I'm grieving the loss of our relationship as partners for 59 yrs, my love my all...every day is a challenge in this journey of Alzheimer's. Praying for you. Glad you came aboard.