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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)

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@IndianaScott

Hello @ice I am sorry to read of your husband's healthcare journey, but it is good to hear you are somewhere with good medical care!

While you will find many hints, tips, and suggestions here on the caregiving discussion group, I am wondering if you have checked out the resources of the national Alzheimer's Association at http://www.alz.org? Also there is some good stuff at http://www.caregiver.org.

As a longtime caregiver for my wife, who while suffering from brain cancer but suffered from many dementia-like symptoms, my daughter-in-law's father who had Alzheimer's, and my mother-in-law who suffered from frontal temporal dementia, one of the things I can say is the dementia journey is highly individualized as are the caregiving demands of each patient. One thing I found in each was routine was incredibly important and helpful to the patient as well as the caregiver. Changes of any kind (location, medical visits, etc.) were often causes for additional decline.

What educational resources have you accessed so far?

Strength, courage, and peace!

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Replies to "Hello @ice I am sorry to read of your husband's healthcare journey, but it is good..."

Thank you for your reply. I haven't accessed much in terms of educational resources so I appreciate the links you shared.

Thank you so much for your positive and encoraging reply. My husband is very functional but I have noticed that disruptions in his schedule as well as travel are disorienting. I will have to check out a Dayclock.