Hello @ice I am sorry to read of your husband's healthcare journey, but it is good to hear you are somewhere with good medical care!

While you will find many hints, tips, and suggestions here on the caregiving discussion group, I am wondering if you have checked out the resources of the national Alzheimer's Association at http://www.alz.org? Also there is some good stuff at http://www.caregiver.org.

As a longtime caregiver for my wife, who while suffering from brain cancer but suffered from many dementia-like symptoms, my daughter-in-law's father who had Alzheimer's, and my mother-in-law who suffered from frontal temporal dementia, one of the things I can say is the dementia journey is highly individualized as are the caregiving demands of each patient. One thing I found in each was routine was incredibly important and helpful to the patient as well as the caregiver. Changes of any kind (location, medical visits, etc.) were often causes for additional decline.

What educational resources have you accessed so far?

Strength, courage, and peace!