Meet fellow Caregivers - Introduce yourself

Welcome to the Caregivers group on Mayo Clinic Connect.
Caring for someone can be rewarding, but it is also very demanding and can be isolating. Let's use this space to connect with other caregivers, share experiences, talk frankly about the tough stuff without judgement and to provide a virtual shoulder to lean on.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Grab a cup of tea, or beverage of you choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Caregivers Support Group.

@kw1904861

Hi.. Thanks for letting me join.. Not sure what to say... My husband has brain injury and I think its getting tuff around here... He's up and moving around when he's not sleeping... He's angry to me a lot.. Any advise. ?

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@kw1904861 I just thought I would check and see how things are going. All of the discussions in this group are filled with good points—have you had a chance to think about them? I’ve not been a caregiver so @jimwills and @IndianaScott are much more knowledgeable than me. Are you taking good care of yourself like @jimwills suggests?

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@becsbuddy

@kw1904861 I just thought I would check and see how things are going. All of the discussions in this group are filled with good points—have you had a chance to think about them? I’ve not been a caregiver so @jimwills and @IndianaScott are much more knowledgeable than me. Are you taking good care of yourself like @jimwills suggests?

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I havent had time yet.. To check it out.. I will.. Taking care of my self.. ? I hurt my self from lifting him off the floor... Im trying to take care....

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Oh no. You need to reach out. To someone. Hospice for one. They helped me when my husband started falling. Asking for help is the 1st good step to taking care...of you. I would love to hear your story. I am sure we all can listen and share our experiences and help to get through this journey. We are here for you.

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@dianajane

Oh no. You need to reach out. To someone. Hospice for one. They helped me when my husband started falling. Asking for help is the 1st good step to taking care...of you. I would love to hear your story. I am sure we all can listen and share our experiences and help to get through this journey. We are here for you.

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It all started last aug when my husband fell down our stairs and received some brain injury... He falls sometimes and im here to pick him up.. He gets around ok.. But i think should be doing better.. I did get him an appt with his dr. To talk with her bout his anger towards me.. To get him to go is another thing... Hes refusing therapy too..

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Thank you for sharing. What involved his initial fall? Did he trip? Dizziness? Was it 1st time? I really hope he agres soon to go to the doctor. Perhaps other family members could help talk with him and encourage him before he further compromises his health. Good luck.

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@kw1904861

It all started last aug when my husband fell down our stairs and received some brain injury... He falls sometimes and im here to pick him up.. He gets around ok.. But i think should be doing better.. I did get him an appt with his dr. To talk with her bout his anger towards me.. To get him to go is another thing... Hes refusing therapy too..

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@kw1904861 I’m so glad you got an appointment for him with his doctor! If he won’t go, maybe you could go anyway. You could explain all that’s happened and get some advice on helping him. You’ve done a good job so far! Let us know how it goes

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@dianajane

Thank you for sharing. What involved his initial fall? Did he trip? Dizziness? Was it 1st time? I really hope he agres soon to go to the doctor. Perhaps other family members could help talk with him and encourage him before he further compromises his health. Good luck.

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I do beleive he tripped on shoes that were on the steps.... This is second brain injury his last one was in 83 from a car accident..

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@becsbuddy

@kw1904861 I’m so glad you got an appointment for him with his doctor! If he won’t go, maybe you could go anyway. You could explain all that’s happened and get some advice on helping him. You’ve done a good job so far! Let us know how it goes

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Thats a great idea if refuses to go... But i did try to talk to his dr and she wouldnt talk to me without him.. But ill try if he wont go..

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Hello. I'm 65. My husband, age 69, has been diagnosed with early stage vascular dementia. Memory loss is evident. We are American expats who now live in Asia. Medical care is good where we live because we live in a medical tourism destination but there's not a lot of education for caregivers for those with dementia. He's taking Exelon as well as meds to control BP, blood sugar, cholesterol. I would benefit from education about how to deal with issues around his memory loss and the progression of his illness.

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@ice

Hello. I'm 65. My husband, age 69, has been diagnosed with early stage vascular dementia. Memory loss is evident. We are American expats who now live in Asia. Medical care is good where we live because we live in a medical tourism destination but there's not a lot of education for caregivers for those with dementia. He's taking Exelon as well as meds to control BP, blood sugar, cholesterol. I would benefit from education about how to deal with issues around his memory loss and the progression of his illness.

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My husband also was 69 when diagnosed w/ALZ, 9 yrs ago (me, 59 then). He was on Namenda & Aricept in the beginning, then after 3 yrs, Sertraline (generic for Zoloft) was added. He's on the generics now for Namenda & Aricept. 'Also on D3, fish oil, turmeric & Preservision Arends 2 (for macular degeneration). He's doing fairly well, still. 'Fills his own meds in the weekly pill organizer; beats me at Scrabble & Sequence often. He helps alot w/chores (emptying dishwasher, folding clothes, vacuuming, dusting, etc.). A DayClox clock has helped. Avoid surgery as much as possible, as memory loss & anesthesia do not mix. He's had hernia & cataract surgery in the last 5 yrs, but I was always insisting the anesthesia be as mild as possible. Went to Mayo-MN for 2nd opinion, in early 2011, & was told he must stop driving. Great advice! He drove the first 42 yrs we were together; I get the second 42 yrs, & he gets the third 42 yrs! Gotta keep the humor going. Good luck.

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