1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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laurie22 | @laurie22 | Aug 4 10:55am
In reply to @pami "I too was wondering if you were on Prolia prior to Evenity? I had two years..." + (show)
@pami

I too was wondering if you were on Prolia prior to Evenity? I had two years of Prolia before starting Evenity. If so, how much gain did you have in your spine on Evenity following Prolia? Thank you!

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I wish I could completely answer this, but I really don't know the spinal increase as it wasn't measured on the Dexa scans I have had. But I had taken Prolia for 2-3 years before Evinity and have returned to is now that I finished that 12 shot series. In the middle of all this, I realized that I was consuming massive amounts of salt and did not know it was depleting calcium, despite my supplements. I consume little dairy for other reasons. All I know is that my number was better after the Evinity.

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pami | @pami | Aug 4 11:13am
In reply to @laurie22 "I wish I could completely answer this, but I really don't know the spinal increase as..." + (show)
@laurie22

I wish I could completely answer this, but I really don't know the spinal increase as it wasn't measured on the Dexa scans I have had. But I had taken Prolia for 2-3 years before Evinity and have returned to is now that I finished that 12 shot series. In the middle of all this, I realized that I was consuming massive amounts of salt and did not know it was depleting calcium, despite my supplements. I consume little dairy for other reasons. All I know is that my number was better after the Evinity.

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Thank you! I hope your numbers continue to improve!

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susanfalcon52 | @susanfalcon52 | Aug 5 8:00am

I do id a year on Evenity. No side effects except the first time I had some achyness the next day. After that, no problem.
Had gains also.

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juanitalinda | @juanitalinda | Aug 7 12:13pm

I am so hopeful. I am 3.5 months into Evenity with no side effects. My dr. Was pleased that my p1np increased considerably, so he is optimistic that I will end up with stronger bones. My dexas were never bad, so they might not be a good indication of improvement.

But ... I am living dangerously! I figure my bones are stronger than 4 months ago so I went shopping and bought that gallon of milk. I carried it near my core, but I carried it into the house. And ... I went back in the pool!

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gmom14 | @gmom14 | Aug 8 7:33am

Congratulations! This is an encouragement to me as well!

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connibar | @connibar | Aug 8 8:06am

Is anyone is the St. Paul, Mn area on Evenity? I drive to Mayo for my shots, but I would love to find a place closer to me!

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osteoresearch | @osteoresearch | Aug 8 8:20am

Brava! Always good to hear positive results!

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sunny65 | @sunny65 | Aug 15 12:48pm

I have a new fractures in my spine. I started Evenity on July 2. My pain doctor wants to put me on Calcitonin. Not sure if this helps to heal fractures faster or help with pain and how it’s interact with Evenity since both drugs are for osteoporosis.Anyone has any experience or been on Calcitonin for osteoporosis ?

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laurie22 | @laurie22 | Aug 15 6:35pm
In reply to @mayblin "Hi @laurie22 from what you wrote, it sounded like you had prolia shots before evenity treatment...." + (show)
@mayblin

Hi @laurie22 from what you wrote, it sounded like you had prolia shots before evenity treatment. If so, may I ask how many shots of prolia you have had before evenity? Also, if you don't mind, could you share your dexa results after 12 months evenity? Thank you very much!

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Sorry for the delay. My femur and hip were down to osteopenia and the forearm was better as well. There has been no spinal evaluation in any scan I have had.

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windyshores | @windyshores | Aug 15 7:19pm
In reply to @sunny65 "I have a new fractures in my spine. I started Evenity on July 2. My pain..." + (show)
@sunny65

I have a new fractures in my spine. I started Evenity on July 2. My pain doctor wants to put me on Calcitonin. Not sure if this helps to heal fractures faster or help with pain and how it’s interact with Evenity since both drugs are for osteoporosis.Anyone has any experience or been on Calcitonin for osteoporosis ?

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@sunny65 I tried calcitonin but I am allergic to salmon. I was told by McCormick that it is weak in terms of increasing bone density. I have read it can help with healing. Can you discuss further with your endocrinologist since it was your pain management doc who recommended it?

Drugs.com says this is a duplication, not an interaction. Dr. Ben Leder on YouTube has a video on YouTube about combining meds, but not these two. I would imagine with Evenity so new there are no studies on this combo because it is not used a lot.

Sympathies on your fracture! Is this your first one?

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