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Meet fellow Caregivers - Introduce yourself

Caregivers | Last Active: Nov 12, 2023 | Replies (707)
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@debbraw

Hi @pattyinal - It sounds as if you have been dealing with this for a long time. My heart goes out to you. Just wanted to pass along something I learned recently that may or may not help. Our local hospice will provide help with anyone diagnosed with dementia - it does not mean they are at the end of life. They do it because dementia is progressive - and their services are free. Also, our local Council on Aging (COA) has been a tremendous resource for me in terms of caregiver support. Do you have hospice and/or COA in your area?

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Replies to "Hi @pattyinal - It sounds as if you have been dealing with this for a long..."
Scott, Volunteer Mentor | @IndianaScott | Jul 29, 2019

Great suggestion, @debbraw I know each hospice organization is different, but the only caveat I would add to this for @pattyinal is to be sure to check with her hospice, insurance, etc. very carefully on any costs on this. In our case my wife's hospice care was only covered after it was officially prescribed by her physician. Then once prescribed be certain your choice is 'in network'.

I only bring this up as a cautionary tale given that I am continuing to pay down what was over $40,000 in uncovered expenses from early on with our hospice.

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