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What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Blood Cancers & Disorders | Last Active: Aug 20 8:10am | Replies (17)Comment receiving replies
I was 2 years on hydroxyurea and then told to go on jakifi. Felt reL good for about 2 months then started to get tired and dizzy at times but I think it is Pv.Any body over 78 on Jakifi.They say the average death is 78 from pv.hope they are wrong
Replies to "I was 2 years on hydroxyurea and then told to go on jakifi. Felt reL good..."
Not sure where you got that information. They can’t say an average life span is 78 with PV when people who have it have been diagnosed at all different ages. Some people are dealing with multiple diagnoses or health issues on top of the PV which can contribute to life span. Try not to believe everything you read. But seriously, I was diagnosed at 55 with PV and 78 sounds pretty good 😉
That is foolish talk! Every case is different. I was 78 when diagnosed! I guess I am dead. Have no symptoms and taking HU for a year and a half. It seems the mutation occurs from aging…
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I am 83 and have been taking Jakafi for five years